Therapy and Therapy

We have finally gotten a grove down with all of this rehab stuff. To say that it is expensive and hard is far beyond an understatement. It might be the understatement of the month!

While having a major issue with scheduling at the rehab department and having to pull a momma bear out of her cage, we got a few things back on track.

So PCH has several locations around the Valley. One is in the East Valley and really close to our house. When we started this incredible hard journey we had to be open and honest with the doctor about our willingness to rehabilitate. So we basically had to contract to make our appointments and do the time to make the most of our surgery. We had 3 times a week the first month and then down to 2 times a week the second month.  When we were getting close to cast off time I called and made sure we had a place in the East Valley and they said it was fine and no big deal. Call when we had an exact date. I called and low and behold they were full.

SHOCKER- NOPE

So we took what we could and have been driving to downtown for the last month. 3 times a week means we fill up every single week. We miss school and we are late coming home because traffic is TOUGH in the PHX! They also cancelled ALL the time. So the momma bear part was me freaking out because we were going WEEKS in-between. WEEKS! That was not what was agreed on in office. Our therapist is also Dr.A's therapist for her CP clinic so I told them to take it up with her. Low and behold, our therapist got a bit of over time!

But it is hard work. It's a lot of work getting him into the hospital. He has finally started getting heavier over the summer and is much longer than he was. So our ability to just hoist him around is MUCH harder. But he has to work A LOT harder to get moving.

He works his core muscles more than he ever has and he mostly does a good job. Very little complaining. I am sure it doesn't hurt that we have had to start a bribing system. He knows he can ear $2 a therapy session. If he meltdowns at home, or fights or won't do his work, he has to give his money back. He has to pay his tithing out of the money and he has made sure that he counts it each week because he is working to buy a video game ( which he got on Friday!) So with 3 appointments in PHX and 2 appointments at home he can make a pretty penny.

He has done really well and is walking a lot more slowly but more independently. He is also a speed demon when he wants to be. His gait is looking good with his braces on but still pretty similar with them off.

Total kudos to Grayson who spends all 5 of those appointments trying to stay busy by himself. I do what I can to entertain him and Ty's therapist do a lot of including. He also earns a few bucks here and there or a new toy to play with. It helps us donate a bunch to the therapy places that we go to.

Grayson is So SO stinking funny at these things sometimes! Ty spends 5 full minutes on the treadmill. We need to get one of these for our house. He could use it at regular therapy at home!

Photography by Grayson on that one!

Playing Tic tac toe- But they don't understand the rules. Between each turn we have to keep our hands up while on our knees. Tough when you have no tummy muscles. 

Crawling backwards to pick up pieces for the ball runner we were putting together. After it is all done we played for a bit then finished off with a game of basketball. 

Tyler and Menaka. He was telling her a story. He lays on his back and has to stretch the medicine ball all the way to the floor then he can throw it. Sometimes he has a lot to say. But mostly we are just so proud of how hard he works. We are so proud of Grayson for being so grown up about sharing his time. But mostly we are thankful for the people who have helped us get to where we are.


Also, Troop Tyler or Team Tyler is raising money for the Hydrocephalus awareness walk here in the Phoenix Valley. It is being held October 24th in Gilbert Arizona.
Our walk page is HERE! Please sponsor us. You do not have to walk to sponsor. You can pay by check, cash or on the site. Walk for a cure is fully funding research. The Staff at HA is small and they do not make a lot of money. It truly does go to find a cure!! 

Orthotic Specialist- Bret

During the mess with Tyler's feet we went to get a temporary brace on Tyler's feet. We have the BEST place to go. We were first introduced to Bret and Barb when Ty was just a baby. Shriner's used them when we first started using outreach. They did our very first pair of Orthotics.

I called Bret and asked for ANTHING that would keep his foot from turning and making the foot worse and make him walk on the top. Bret quickly worked us in and we had a great experience yet again. We love them .






The brace was temporary but we hope seeing these people last forever11

He is my Brave Hero

I cannot tell you how amazingly brave and strong my sweet 4 year old is. I was listening to a song tonight that about sums up my feelings.

Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's so tired and he's scared
Let him know that You're there
Can You hear me?
Can You see him?
Please don't leave him
He's my son

The feelings I have had this week have been a HUGE roller coaster as they always are around the times we have any kind of procedure. I half laugh because jokingly said " it isn't brain surgery" and we have HAD brain surgery ( a lot) yet it still makes my insides and my anxiety kick into gear. The feelings of helplessness, defeat, and for me a lot of guilt get thrown in as I watch him go through ONE more thing and know that it isn't the end.

The morning went really smooth considering our early wake up. Ty was actually still asleep when we were ready to go. Which is GREAT and helped with the no eating issue.
The roads were pretty good as well until we got into downtown but we made it just in time to check in.

Ty was a pretty happy camper and we got him all set up to watch a movie and get ready for the paperwork to come. When we got there and they were ready to put a hospital bracelet on he FREAKED until we gave one to his Barney.
Shriner's has a bag of stuff ready for all the kids on their bed and the puppy was in it. He was in love. The kid currently has a zoo with all the stuff they have given him this last week. So he is all ready with Barney and his puppy watching a movie.


When we asked them to put a bracelet on Barney they even wrote his name. ( man I should be a child life specialist cause I had all the answers for my kid... OH WAIT... I am)
The vitals are pretty tough for Tyler as well. He cries when they do them. I have no idea why, but again I got the bright idea to have Barney's done and Ty complied when me and Ty did Tyler's where they needed the stethoscope. It was kinda nice to not have him cry. ( yet)
The docs were taking forever ( not uncommon in a specialist hospital or appointments) so me and Ty went on a wagon ride, all over the top floor of the fun hospital. Seriously. Shriner's is a pretty happy place.

As we headed back we started consents and talking to Dr. Gooch and the surgical team. And then came the waiting.

They gave Ty Versed. It has never worked before but man did it work this time. He was so freaking funny. I would sing him songs and he would laugh and laugh. He was "telling" his dad he was a penguin and patting his dad on the tummy. It was funny. This is the hardest part of the day knowing they are taking away my baby. It NEVER gets easier. But we laid him in the bed and off he went. NOT A PEEP.. and I didn't cry because I knew he was not missing me ( that I heard!)
We ran down and got some breakfast while Ty was gone and headed back to the room.
A tid bit about Shriner's. Most of it is run on donations and from the local Shrine. They don't take credit/debit cards there at the Cafeteria. ( I didn't know) and they handed me the receipt and said oh well. That is what we are for. Seriously. So when we went today I remember a check book and was able to "donate" back.

We got back to the room and Ty was on his way soon. It seemed everything went well. We didn't get to see Dr. Gooch but saw all the rest of the team and have all of our therapies lined up and appointments for the next 2 months to see how this goes.
Anesthesia is kind of a a beast for Tyler. For and hour and a half he screamed. And yes I look mean and fed up but we did that for an hour and a half. I was blocking it out... BLOCKING... and I have bruises.


When we finally got him settled we were able to take him home. But before we did I asked the Lady to please give Barney casts and so she did. Barney had casts and was ready to go with us. Tonight Tyler wouldn't play with Barney unless they were off but he was pretty content having the same things as Barney.
Tonight was sponge bath and meds time and he was pretty tired. The next few photos are not GREAT but shows what we are looking at for his feet.

So the verdict on the feet and why we are doing this.

1. The phenol shots that were put in his gastric and abductors are to help with the tight muscles cause by CP ( or brain damage) by taking away the tight muscles we are hoping to encourage the not strong muscles to take over and help make his muscles some what normal.
   
2. Casting, after the shots helps us stretch the muscles that have been tight for a long time in hopes that the shots will work and do their magic and a more "normal" gait will arise
3. Casting will hopefully help future orthopedic problems. Look at his toes in the last pictures. They do not sit straight. They curve. That is a GOOD curve to normally how they look and it is WAY WAY worse and isn't suppose to be there .
   

Tyler is current unable to walk, and crawling is hard. He basically can't get around. Mom is his way of transportation and dad is his way of getting loves. It would be so helpful if family and friends would come buy, knowing he might be mean and unfriendly but show the support. He will know you are there. And from the mom stand point it shows you care.
Because he is totally dependant on me at this point I know I could use a few adults to converse with so I don't lose my sanity. I normally wouldn't' ask but I am asking for the help from friends and family at this time. Please come and help us out. I promise the favor will be returned.

And the moral of my story:
I love Tyler. I feel I have given up every part of who I "was" and was "going to be" in order to be his mom. More so by going to the therapy, advocating really loudly sometimes and losing "friends" in the process. I needed my son to have the best possible outcome for his sake. I will continue to do that, even it it does step on toes.

I love him more than anything.
The words of my song as I beg my Father in Heaven
Can you hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow
See, he's not just anyone
He's my son

I will and would take his place in a heartbeat.

T you are MY bravest of Heroes

School is in!

Oh what a day! Ty was able to go back to school today. He woke up around 4 and wanted to sleep with me. I put him on my pillow and off to sleep we both went. Around 7 I got up to go potty and he said mom and went back to sleep. Finally at 7:45 I asked if he wanted to get up and get ready fro school.

Covers went off and I took him to eat breakfast and get dressed. When he heard the bus come he was all ready, with glasses on and his blankie in tow. For some reason he won't let his blanket out of his sight.

The bus made him smile. He got right on and waved the whole way out of sight.

I was able to go back to bed for a nice long nap.

Getting Tyler back home was so nice. He was so happy.

Here is the note from his teachers today:

Monday:

We heard a lot, a lot of babbling ( trying to add to the conversation along with all the others in the class.) and he was very active outside. He was practicing his new skill that developed over the break JUMPING! He was practicing his jumping and was very proud of it! I called over another boy who is also working on jumping too- they had a good time clapping for each other.

That is the update of the week!! I was so excited that he was trying to babble with the kids. He tries so hard to talk to them. He will get there!!

Long time no update

I posted on Wednesday but it feels like a million days ago. A lot has been going on the last 2 weeks and I haven't really updated.

I had a really really hard time with this surgery. Like I couldn't stop crying. Stupid I know but I don't think a day went by that I didn't call my mom bawling.I was frustrated, sad and so upset over his tone that I felt VERY alone and not sure where to even start to get him help or to figure out something.

On Monday I sent him back to school. He was still a bit gunky but nothing like he had been. Because he was clear of green stuff I thought it would be good for him ( and me) to get him back into a routine. His teacher agreed on the tone and said that when he would get excited and play really hard he could hardly keep his balance. He was encouraged to use his walker and they used the wagon a lot more than they ever have with him. It was very discouraging to me. I thought maybe I was playing the over reacting mom and was "seeing" things but nope.

Tuesday we went to PT and OT and music. He was having a rough day and wouldn't do anything for Jackie ( his OT) His PT was sick so when I went down the hall I heard him screaming so I went in to save the poor girl. Ty was not having ANY of the activities that he was directed to and was throwing major Tyler tantrums on the ground. It was not the best therapeutic session we have encountered. On a plus note Jackie said she didn't notice a increase in his hands just in his legs.

Like I said, I was a mess. I went home and bawled. Part of the day was spent frantically searching for someone who had any experience with increase tone and the other was calling his docs and specialist to figure out what and who was responsible to help us figure out the next step.

I got myself together and called his Rehab doc and left 3 messages ( and have yet to hear back from them.) I called his orthotic dude, Bret, and Brett decided we needed to be seen. He is AMAZING. We got an appointment with him on Thursday.

Before we got into Brett we were sent to do scans and a Shunt series ( the CT for his brain, the shunt series to make sure the tubing is draining in his stomach) the Shunt series was needed to figure out where the old tube was. I wish I had a picture of the scan that showed all of his tubing just hanging out in his tummy.

Right after our scans were done we headed into the Neurosurgeon for a follow up and was able to ask a lot of questions. The info that the neurosurgeon gave me was that his ventricles were so large and went so small in such a short amount of time his brain is in shock. The shock therefore causes him more tone. He rarely sees a kid that doesn't go back to baseline in a few weeks.

Till then we increase his stretching and encourage him to walk and do our best to get him off his toes. He is doing much better. It hurts my heart to see him regress. It was kinda tough on my. I cried.

Bret's appointment was on Thursday and we had a wonderful visit. We rescheduled till 11 due to Ty actually sleeping till almost 8. There was no way to make it to Downtown in less than an hour with a shower. The drive was uneventful and I even managed to make sure I didn't speed as to avoid Arizona's speed cameras.

Bret agreed that his tone had increased and that a few other spots were tight. We talked about his castings and his new braces and what is the best course of action. We have botox scheduled for April. It feels like it is all in slow motion in hopes of the botox working.

We are looking at finding something med wise that will chill Ty out enough to get a good casting. Bret is going to be calling our docs and seeing what we can find out. Along with meds and having Dad there we hope that we can get a good new casting.

We called Dallas as soon as we were done and asked if we could drop by. He had a meeting so me and Tyler decided to hit up the mills on the way home. We got to the mall and ate some lunch and shopped for several hours.

We had a great time and Ty even got to play with some puppies. He had a good time and he was such a good kid.

Friday was a bunch of errands and we had our neighbors over for a BBQ on Dallas new grill. While we were eating Ty decided to sit on my lap and "eat" with me. He had had lasagna before we all sat down. Since he "eats" my food with his hands first he was super messy. He always has to touch my food. ( I think it is his eyes but that is just me) Anyway, He took off with my corn on the cob and took it into the living room. I chased him down but took pictures before we got him to give back the corn on the cob

Ty eating dinner. He had his OWN corn at the time.

It ended up being a good week. I am glad we have some answers to his tone questions.

You know those amazing weeks......

Well it was definitely a good one. We had a amazing week this week and nothing horribly spectacular happened. No winning lottery ticket. No wild and crazy parties. Just good old fashioned family fun!!

Our new friends in our ward had us over for a play date this week. It was so fun to see Ty interact and be considered the "normal" kid. We had Caden's developmental specialist there ad had another kid with Autism there. Ty was trying to interact with them but because of their "issues" they wouldn't. He had such a good time with Caden when he played ball with him. They are so cute! We are excited for a play date next week and a birthday party on Saturday.

Tuesday we had a eye exam and a pediatrician visit for the go ahead on his dental work. The ped visit was first. WE had talked about just doing his well "baby" visit but found that there was NOTHING until the middle of August. Well I want his teeth done before school so I told her that "since there is nothing till August I guess we are sick!" I don't' think the nurse was impressed but I knew it would be fine with the Doc. He came in asking what was wrong with Ty and I said nothing. And we had his Well "baby" exam and we got the ok for his dental work.

The eye exam was a tough one. We had to dilate Ty's eyes and that makes for a LONG visit. We went to Target and hit up the dollar section and got some new toys including a ball and he handled it really well. The good news is.. He still has eyes. The other news is not much has changed. They are watching one of his eyes for strabismus but I don't think it is. But we will see. I can order a new pair of glasses if I think it is necessary right now. His last pair is still going but will soon need a new one if he continues ripping them of his face.

Physical therapy was kinda blah this week. Ty was not a happy dude. He cried through the whole thing except when we were leaving and going. He likes to push the buttons on the elevator and he only gets to do it if he uses his walker. So he was a happy kid.

I also decided to sign Ty up for swimming lessons. He loves the water and he loves that he can move around. So Thursday we headed to Aqua Tots for his lesson. When we got there it was canceled. Some little kid had an "incident" in the pool and it was closed. BUT don't worry... Makeup lesson the next day. ( incident is not pee-pee)

When I pulled back into the drive way with Ty and us not being able to go swimming he was so upset. HE started to cry until I told him we had bought him soda. He was so sad. But his dad made him feel much better.

Friday was a great day. We went and did our makeup swimming lesson. He goes under the water. He blows bubbles. He jumps in the pool. He floats on his back. He screams with Joy, he kicks his legs. He splashes water all over. He is in heaven. And he is sad when he has to get out. He LOVES the water. I can't wait till he turns three in order for him to get water therapy ( that can't be taken away) and music therapy.

I ran a few errand and mailed some stuff. So be waiting everyone who has stuff coming. Lily, mom, crystal and Barrett. BUT Barrett, yours is going to mom since I never got a email with your address.

Tonight Dallas and I went on a amazing night out together. We had reservation at Rio Sabor and ate an amazing dinner. We browsed a few bookstores before heading over to ASU area for a Comedy Show. We have never done one together so we decided it was different and we got tickets. We saw Josh Blue. He is the winner from last seasons last comic standing. He also has cerebral palsy and was just a riot and we laughed so hard. He is so funny and well worth waiting for.

Spending time with Dallas is so much fun and a well needed break from "real Life" and spend a night remembering why you fell in love.

On Another note. I came home from work last week ( Saturday I believe) and Dallas wouldn't let me in his office and sent me in to take a bath. I was a little "pissed" and spent the time in the tub searching for clues in our various bank accounts for what he happened to purchase as a "surprise" Well, after my bath he gave me my gift. A brand new Mac book. I LOVE IT!! I more than love it. I am a true convert to Apple. I am so proud of Dallas and how great he is. He is doing so well with his new business. I am so glad we have been paying off our stuff and getting out of debt and then to be able to buy without going further into debt. He is working so hard and I love him so much.

Here is to next week. Hoping we can make is as great as this week.

Very unsettled

A few posts ago I posted about being settled. While I am settled with Tyler I am not settled emotionally any more. I am not sure how long I have been unsettled. I am not sure if it s a new thing or if it comes and goes but one thing for sure is that I needed help and I got it and I am excited to keep it going.

After discovering some mean horrible things I decided ( after much crying and though) that I needed me time. That meeaning no more enmeshed family. No more over involved family member, grandparents and sisters. No more phone calls, emails or responses to anything.

I am still on the depo lupron and am on my last month and have been way more emotional than I have ever had to deal with. I started some new medication and hopefully that will help me out a little more.

I started back seeing a therapist. She specializes in PTSD and I really like her. She has helped alot even after one visit.

I started weight watchers and lost 3 pound this week. And while out for the meeting made an impulse move and got a pedicure. I am looking forward to a little me time on friday and plan to go tanning.

I have used my respite worker a lot and will use her every day this week. I am getting ready for visitors next week and she is going to entertain Tyler while I scrub, dejunk and make my house more stress free.

I am looking forward to fixing me. To making me more settled and to do what I need to do. I am not that person that my family has made me out to be. Those who have claimed to be friends with me and have hurt me don't be surprised if I don't let you in. Don't be surprised if you find yourself talking to a different person.

I have been a little to hurt this time. ...


As far as Ty is concerned we have been super busy and it won't let up.

Monday we went to foundation, Tuesday I had my meetings and toe painting, Today was PT and we cleaned the bathroom and walk in closet. They are dejunked and beutiful. Oh and we had an eye appointment for Ty. Thursday is OT, and eye therapy. He is going to be working on feeding himself and scooping his food. He can get it in but not scoop it up. Resptie will be here and I am hoping to be done with my room and most of Ty's . I hope that D will be able to do the office this weekend. Friday we drive into Pheonix and work on his braces again.

Don't worry.. I still have to work at night and I am dealing with the mean and horrible people there. Things are getting better though.

I will be ok!! I will be ok!!

I have no Idea how to share this one...

I have been told that I am negative towards my child. I have been told I am hindering HIM and what he can be. Although I disagree with those statements I truly feel that I have had a realistic outlook on his life as a preemie and the long term issues that we would be facing.

When we found out we were pregnant I was still determined to start at the U and finish my degree fro Child development and get my certificate for child life specialist. I had the same instructor for 3 of my classes and I was really looking forward to my classes.

The first week of school came and I was doing better at not puking during classes (of course after class and in between was a different story) but I let my teachers know that I was pregnant and that I was actually going to be able to have the baby the day of my last final. That was what we thought.

Fast forward a few weeks.. We are getting ready for our first test and we had to cover prenatal stuff. We were learning about the age of viability. We were taught that according to our text book it was 25 weeks. That was the *magical* age. We were taught of the outcomes and the hardships.

Then came *that day*. I was 25 weeks. In fact I was 25 weeks and 3 days. I was VERY sick and I was paranoid but there was something wrong and I felt it. The rest of it is history. Ty came and we started on our journey.

Some issues we faced were:

PDA
IVH
Hydrocephalus
ROP
Craniosynostosis

After the PDA was fixed it was fine. We have had no other issues with his heart. We still don't see a cardiologist.

The Brain bleed was severe. It is severe. He has a grade 3 and 4 bleed. We had no idea what our outcomes would be because of it. We were told many things. But we were told that no one could predict what he could do. That is what we held onto. We jokingly talked about pimping out his wheelchair if it came to that. AND then the relief when he was determined to crawl and now he is determined to walk.

We though the hydrocephalus was resolved but after the reservoir was taken out we had our complications. He had a emergency shunt placed and then revised. Nothing since.

The ROP was severe and was treated with laser surgery. We were warned of the chance of CVI and yet some how we escaped that diagnosis. Even with the bleeds.

His craniosynostosis was a direct result from his prematurity in which we fixed and feel like we have dealt with that the best we know how.

What long term issues?

Ty has a limited vocabulary. BUT we are working on it with speech therapy. They say his receptive language is actually above average. Meaning he will do whatever we say.. Which is true. He follows directions so well and is VERY well behaved. PLUS he says and mimics some of the absolutely cutest things. Makes your heart melt.

He has a few sensory issues. All of which are a dramatic change from who is was last year. He won't scream when we vacuum and he eats just about whatever you put in front of him ( especially chocolate) he even tries just about every thing. He has even enjoyed a few shrimp scampi!! He is getting use to noise but that one.

We will always deal with the shunt on a as needed basis. So for us it is not big deal and we deal with it when we need to.

His eyes. Well they tell us he is legally blind. But then as we go back and do his therapies his eyes improve and we can see a huge difference in him. So we will just plug along doing what we need to do.

The biggest is his mobility. Although he took his time hitting his milestones he has some spastic muscles. Although he falls in the normal range and no one can decide on what to *call it* The neurologist feels it will just all fall into place and the PT we are currently seeing is helping us a lot.


So those are the long term issues. Not such a bad list right. RIGHT!!! WE are so happy with his progress and the things he is doing. So, after all the list... I took Ty to PT today. He is doing so well with this new place. He LOVES the swing there and we were working on his walking today with his AFO's. After we got them on the PT wanted to "try" the pediatric walker. She said that it usually takes kids a while to get use to them and to use them. We raised it up to the highest setting and set Tyler in. You will never guess what happened!!!! HE CRUISED CLEAR ACROSS THE ROOM. He did amazing. His left side of his body is a little less strong so we will be working on that but we have decided that for Ty and his mobility he is getting a walker. The PT doesn't think we will use it long, but if we do we do. I was so proud to see him walk. He has now exceeded EVERY expectation of the HORRIFIC Nurse practitioner that we had and he is continuing to do more than we could ask for. We are so proud of him.

Weekends go by way to fast!!!

I can't believe the weekend is almost over. I LOVE having Dallas home. LOVE it!! It has been one C-R-A-Z-Y week and I was oh so looking forward to the weekend.

So the week in review:

Monday we had our neurologist appointment that went SUPER SUPER well. He gave us some new meds to try with Ty. They suck. So I am calling on Monday to get something else till we can get in for the testing we need to do.

Tuesday was my day off from work so I am glad that we didn't have anything planned and Ty and I were able to take a nice nap. He seems to do great when I sleep with him. To bad there isn't a bed big enough to make that happen.

Wednesday was another big day for us. We had a eye followup with Dr.S and he did great. Ty screams when a doc gets anywhere near him now so he happened to freak out when I had to hold his arms down and make him open his eyes. But Ty is doing better and is wearing his glasses for longer periods of time.

After his eye exam we went to our first PT appointment. We are trying to help Tyler learn that he needs to participate with someone other than his mom. He is so clingy and so a mommy's boy that it is getting a bit out of hand. So we decided to do clinic based therapy. He of course screamed through most of this and didn't show the poor PT that he could do half the stuff he can do. So I get the look of " gee mom you were feed a large piece of crap and you ate it. We don't believe a word you say" look. I know all you moms with "special" kids get it. So I am hoping in the weeks to come he participates better.

Immediatly following our appoitment with PT we were on our way to get his braces checked and fixed. He won't wear them at night so we are having to find other ways for him to wear them. He wears them outside and we practice walking up and down the sidewalk. We have also taken him to walmart where he walks the cart. We take forever and I am sure all the people who are there hate us because we are slow but I don't care much.

We did stop at Burger King and have a burger and all the power went out so we were sitting in the dark and the smoke. Smoke because the grill didn't have a fan to let it go out. After eating we drove to Scottsdale before hitting Pheonix. We wanted to see D and give him a hug. I LOVE visiting him. We also met all his co workers and had a great time.

Thursday was our interventionist from the Foundation for blind children. I LOVE this lady. Her name is Marta. She tries so hard to get Ty to do stuff with her and not with me. Ty is getting much better about it and he always gives her a hug at the end of the session. She is also there at the foundation on Mondays for our play group when we are able to make it.

Friday was my day off and me and Ty were the laziest mom and kid in the world. We hung out in our jammies watching barney and baby Einstein all day and reading books. We showered and stuff after daddy got home and smelled how stinky we were :)

I had Friday off and Dallas made me a great dinner that we ate together after Ty got in bed. I love spending time with D. This time next week we will be waiting for my mom and dad to be here. SO EXCITED!!

Saturday was my day to get up with Ty. I was sure hoping he would sleep in and well.. my wish was shattered when the poor kid was up by about 5. Poor kid. He did spend the day playing though. We woke up from our nap to find our dad missing. He had made an excursion to Home depot and was outside being man domestic and put in a few plants ( that I killed... you still have to water them apparently) and some wonderful looking lights. I just hope our stick tree isn't really dead. We went to dinner and I headed into work. I am not LOVING work after ten pm. So Any prayers and well wishes would be much appreciated.

So tommorow we are attending our new ward. And we are going to spend the whole day enjoying each other. I sure hope the week goes by fast.

The most exciting news of the last several weeks....... WE FINALLY GOT LONG TERM CARE for Tyler. For those who read this from Utah. It is basically DSPD but no waiting list. We will be getting respite care and other services to better help with Tyler. It also means we won't be having to pay extra for anything medical. His meds will be paid and all copays will be paid. Saves a little each month...and well Respite is gonna rock .


So that is our week. Stay tuned for Ty's mohawk