Wednesday, October 29, 2014

Fall Break- Tuesday

Tuesday morning was a early morning for me. I HATE early mornings. I hate early mornings even more when I hear mom and Lexi fighting over hair. OH geesh.. that is the dumbest thing to fight over AND I have fought over the same thing with my mom for YEARS. So I roll out of bed, SAVE THE DAY!! And fix the cheerleaders hair. Lexi has a big game to  cheer for and her friend needed her hair done too. YAY for nana ( that's me) for saving the day.

I went back to sleep... dang teenagers.

For our activity this day we had gotten in touch with the Museum of the San Rafael and my friend Tiffany who works there. We had set up a blind tour for Tyler. Which mean we could go in and get IN the exhibits and hold the bones of dinosaurs. It was defenitely a first for them and for us. No one lets us get any where near the exhibits. But it was so so so much fun .

We took Kayden and Koy with us. Grayson had fallen asleep so Grandpa was waiting at home for him to get up. Be had a blast.






Later that night we went to our very first  football game. It was the "big game" for the junior high and lexis last football cheer leading. We were so glad we got to see it. My boys were freezing and done by the time the game ended so we left a bit early. But we were super proud of Lexi. 



Fall Break- Monday

Monday the kids had to go back to school. We were so sad. But we knew we wanted to play a bit. So we had one activity planned a day for while we were there. We got up and Grayson wasn't feeling so well. And he spent his morning throwing up. I was so frustrated. He has not been doing awesome the last little bit and his energy once we got to Utah really dropped. ( After we got home, the hematologist was a bit worried and he said that it was because of the elevation. So it wasn't a surprise)

We got him feeling better and we went to the park, where we happened to run into the Fire Marshall for the town. So he took us over to the fire house. Where Grayson was in fire man heaven. He was so excited. I was just hoping no one else would puke!!

I knew the fireman that belonged in the coat above and he was the smallest one of the group, so I put it on my kiddo. He was so in love. He loved it. 


We were sitting on the inside of the blue fire truck and we were trying to honk the horn. The fire marshall said you have to pull hard, so I pulled hard..... and broke the fire truck. It was awesome. I think I was Grayson hero that day. 

After we saw the fire trucks it was almost time for the kids to come home. So we went to grandpa's and hung out till the boys got there to play. My kids chased the naughty cat named Beckham, They loved it. 


Day 2: Sunday

Sunday morning brought on bouts of laughter and loving on Nicky's dog, Oreo. The kids ( Kayden, Koy and Lexi) were with their mom until later, and Nicky was still there to play with us. We took full advantage and after conference session we went to the local park at my moms.

My parents live in Small Town USA. I grew up there. My mom grew up there. Her dad Grew up there ( kinda) and it is LITTLE!! The local park, however, is KILLER. Nicky and my mom and I went down after the boys left on the side by four wheeler. The boys loved it.

At the park we played with Nicky's dog and had him chase the ball and since he can't drop it, Grayson and Tyler would run circles around him trying to get it out of his mouth. We were all laughing so hard.

During the second set of Conference, the boys played outside, non stop. Grayson also realized that my moms neighbor has a cat that is really fluffy. He also likes to be petted. But doesn't like to come with called. We also thought that there was a possessed cat. Turns out that Cat was Grandpa's and he loves Grayson.

Later that night, my dad went to pick up the kids and my sister left. My kiddo's took off outside to play with the cats. I went out to check on them and do my homework and they were missing. I got in my dad four wheeler and went looking. Sure enough, the boys were lost. They were right in the middle of a HUGE field full of piles of dirt. They were almost to the river. Luckily they were stuck.  They were crying and screaming to help! I saved the day by climbing over the piles and saving my kiddos.

The boys said they were looking for the cats and then they couldn't find the right place that was our house. In other words, a blind kid and a 3 year old can't find their grandparents house, that they don't visit very often. Thank goodness the town is little. And thank goodness they didn't get to the river.

The rest of the night was spent with Kayden and Koy and especially Lexi. I love them so so much!



Monday, October 20, 2014

Fall Break- Day one!

Arizona has some strange school schedules. However, we love the breaks. We get a shorter summer and longer breaks. Fall break is about a week and a half, Spring break is 2 weeks and Christmas is 2.5 weeks. Sometimes that is good, sometimes... well not!

Originally we had plans to go to Utah so that we could have some work done on Tyler's legs. But Shriner's and our schedules got all messy really fast. So we have plans to do it again in a few months. We were a bit bummed and frankly I was so frustrated. It is so hard to be stuck in one place. We haven't been anywhere in almost 2 years ( for fun, not for surgeries) and I was struggling with needing a break. I decided to bite the bullet and go ahead and TRY to drive the 12 hours on our own.

The "break" for myself never seemed to happen. I never got a chance to be alone in the entire week, but I didn't cry either. I always cry!! When I talk to D on the phone while we are gone, by day 2 or 3 I am in tears wishing we had never left. But I survived until the trip home, right around Page, before losing it!

The boys had a ton of fun and I tried to make sure they got to do things, but not get to overwhelmed. It was a pretty positive trip. On the  HUGE, fun ,plus side, we saw all of our cousins and the boys played till our heart was content.

Day one: Driving-

We left around 3:00 am. I have never driven so I was a bit nervous going. D and I had hoped that the earlier I left the more the boys would sleep, and well, that didn't happen.  They were awake the entire time to our first stop. We stopped for Breakfast in Flagstaff. Getting out when your temperature says 33 degrees is the BIGGEST shock to your system. Add that to a little boy that is Severely anemic and the fact that we left the Valley at 3 am and it was STILL 65 degrees. Needless to say we were a bit chilly.

About Page the boys fell asleep so I pushed to get to Kanab before they woke up. I was SO thankful to get to Kanab. I had researched every single town on our way and had the city parks of every single town so we could stop. It was the first time in my entire life that I was thankful that we have food issues and that I didn't have to stop to take little bladders to the bathroom. The park was heavenly and we were able to push out lunch till we found a McDonald's with a play place. ( In case McDonald's reads my blog, I wish they would make more places with amazing play places.... but nope. You sucked!)

* SIDE NOTE: *While at the park, the boys were met with 2 other little boys who lived there in Kanab. Tyler tried really hard to get them to play with him, but they were SOOO mean. I was so frustrated but needed the time to stretch out. But the grandpa was raising the boys and he had a dog. Oh boy did the boys LOVE that dog. It was a bitter sweet thing to watch. I was thankful when the grandpa stepped in with the mean kids so I didn't have to.

We pushed to Richfield where I KNEW there was a McDonald's with a killer play place ( thank you All Star Basketball teams) and we were able to stay there for an HOUR. Yes folks, I stayed at a McDonald's for ONE HOUR!! I knew what the last stretch held and I just hoped we made it with no more tears.

From Richfield to Orangeville was about 2 hours. Grayson decided he was all done and took off his seat belt more times than I could count. Finally I stopped pulling over and just let it go. Letting him go meant that I had a SEVERE anxiety issue but getting into the good old EC ( what us cool folks call Emery County and what we call it to make it sound WAY cooler than it REALLY is) and realized there were NO cars on the road and we were going to be OK. ( Longest part of the trip was the last 20 minutes. I could have fallen asleep then!!)

We pulled into my parents drive way in just enough time to hug and kiss on grandpa before he had to head to Priesthood conference. Aunt Nicky came down to see the kids and brought her dog, Oreo, aka our "cousin" so that they boys could play and she could kiss on a few faces. We were sad to miss my sisters kids but they would come the next afternoon.

I was so thankful to not be in a car any more. Had a great chat with my mom and was SOOOO thankful to go to bed.




Saturday, October 18, 2014

Some Random Photos-

There is so much we want to catch up on and share with you our cute kids. There is also a few more controversial things that I want to get working on so here are the mundane journal type things that will reminds us of all the awesome stuff we did! Here are the photos- With explanations!!!
After Long days with this little dude, we sometimes go get our dinner and fixings for our dinner and even some YUMMY chocolate muffins and then spend a good portion of the hour back with the fish. Some day I will buy him a Beta. But till then, he can enjoy the dead frogs that were in the gross tanks. I guess walmart isn't in the running for an aquarium award. 
Dollar store crafts are where it is at. We went and bought 10 bucks worth of stuff to do from the dollar store.  Grayson did a great job painting with the WORST paint in the world. He loved it. A good 40 minute activity that didn't cost us a fortune! 
Because of our low iron problems, we keep looking for stuff Grayson will eat that have even a small amount of iron in it. However, he has a problem eating food and is really picky. But he has decided that blue is his favorite color. I managed to remember how to flavor/color  the eggs and he LOVES them so it looks like blue eggs for a few weeks.
We are no longer taking naps. So when we leave, he falls asleep as fast as he can. Usually it doesn't last long and sometimes it is SO needed that we MAKE ourselves  fall asleep. HE is SOO hard when he is tired. And this is how we find him when we get home. 
I might have encouraged my child to have a crush on my appliances. The detergent smells so yummy, the machine runs like a charm and WOW. I am in love. And he is in Love too!

Grayson gets Iron when we can get it down him. We can trick him for a few tries but as soon as he swallows the tricked iron he starts vomiting and vomits the rest of the night. I hate vomit. So we spend the night on the couch with Betty our Barf Bucket and he is miserable. 
Cerebral palsy is not a nice condition. It hurts. All of these showed up in one day. It was just bad. I hope and pray for a day that it will go away. 
Grayson and I find the strangest things. We are sitting in the parking lot at the store watching a dump truck and a fire truck. 35 minutes we waited. 
This is our stake county fair for Church. It was HUGE and crazy and the boys LOVED this little train. We will be finding one for Halloween at the pumpkin patch for sure.

My tat debut. Sometimes a mom will go to extreme measures for just a little piece and quiet.


We are Flooding - A catch up post!

 We are not CURRENTLY flooding but we did flood. It was a good day of just nothing but a downpour. We loved it. We were awoken in the middle of the night to some awesome Thunder and it continued all day and all night. Our park flooded and we loved it. We spent the entire afternoon outside playing in the rain and muddy puddles.

And, well, I took photos!







This is the park when there is no water. We had a great time and because we are on the surface of the sun, all the water was all gone in less than 24 hours. 


Iron {or not} Man!

Oh man! Do we have a pale Ghost in this neck of the wood. Grayson is still a little.... NOPE a LOT low on his Iron. After our Utah trip ( coming up in a few blog posts) Grayson was terrible. The trip home was exhausting and in Utah he had a hard time staying up with the "Jones." ( OK Martins and Gales and Shaw's.... AKA our most favorite Utah people) When he is tired he become 3, and destroys EVERYTHING in his path.

So after our said "Vacation," I called and asked them what in the world was I suppose to do when our entire day is spent being mad at a 3 year old all because he is so stinking sleepy and tired.

The appointment was easy peasy and not much to report that wasn't sent to the Gma's and Aunts that asked, but the best part, Grayson is doing so much better and letting them poke him. His Iron is still low, he will be ready for a transfusion on his next appointment in January and if we go to Utah, to be prepared for some MASSIVE mood swings when he comes back home. Because he needs more oxygen in Utah, his body has to work harder. So when he gets back, he is just trying to adjust and it makes him a ticked off 3 year old.

In the mean time.... Here is my sweet toot, being a " Brave Dragon!"



He looks sad, but he was really just fine. The blood pressure cuff had to be repeated about 4 times. 

So totally off topic of anemia and thalassemia, but we are in the oncology department when we go to these appointments. ( Thalassemia is a blood disorder)  So the cancer place. I had recently developed a cold sore ( on said vacation!) and they made me wear a mask. I was happy to do so. The waiting room was packed with adults in masks, but not many kids. I looked over and a dad had written in tiny letters on his mask " EBOLA!"  I took a terrible picture but EVERYONE was dying of laughter.