Unable to speak for 2 decades, new device gives woman her voice back | WCBD

Unable to speak for 2 decades, new device gives woman her voice back | WCBD

I thought this was worth reposting..... I want to be that mom who hears THANK you mom and I love you!

Left Without A Voice

It's just after 12 and I rush downstairs to wait by the window.

My little dude is suppose to be home soon. He has NEVER gotten home after 12:10 in his whole preschool career.

I sit by the window watching.

Waiting.

The noon news ends and it is 12:30 and STILL no Tyler.

I call the school and the teacher says he has been put on the bus. Her part is done. Here is a number. I feel a lump rise in my throat and call the number. The rude lady on the other end gives me ANOTHER number.

12:35.

Where are they? We live less than half a mile away from the school.

Something is wrong.

12:40

The lady gets back on and says that the bus had a few extra kids today and they are on their way.

12:55

FINALLY the yellow bus rolls up.

The bus Driver explains that a mom forgot to be there to pick up their kid. So they waited a little longer. Then went about their route. They were over by maverick ( not sure WHICH maverick there are 2 one CLEAR in town and one JUST up the street) and realized that they still had Tyler on the bus. So they finished what they were doing and brought him home.

Sorry... it wont happen again.... And the Aide pipes in... didn't you get my message?

No missed call on my cell phone.

AND I was ON my phone so no message on my machine like she claims.

Tyler ALWAYS sits right behind the bus driver. How can you FORGET? And you have a lady who's job it is to MAKE SURE all the kids are off the bus and safe.

It is your job.

Tyler is non verbal. He doesn't really "talk" He can't tell you what his name is. He can't tell you something is wrong. He can't tell you you forgot to take him home..And most importantly he can NOT tell ME that they hurt him.

He was on the bus for 45 minutes. MUCH longer than he NORMALLY is on that bus.

Panic. Fear and then worry. Replaced by a sense of relief that he was home.

But who do you go to? I waited till I was done being SOOO mad.

I called the district transportation. They apologized and said they were sure it was a sub. I assured them it was his real bus driver.

I feel mad.

I feel angry.

I feel mad at myself.

I feel sad.

How could I leave him without a voice?

My MOST prized possession in the WHOLE world was left without a voice

YAY speech!

What a whirlwind of the past few months! We have talked about communication with Tyler a MILLION times I swear. The roller coaster dips SO low on that one. But I can honestly say that the upswing is going slow.... but going UP!

Therapy is going. Really.. just going. We don't see major strides in therapy. I don't know if it is the therapist or just the whatever. I don't know. He literally cries through most of therapy. The therapist and Tyler are like oil and water. I think they have had ONE productive session.

What I think is making a HUGE difference is his school and being around kids. Though we don't have my nieces and nephews much the little bit of time they spend with my brothers and sisters kids is making HUGE strides. And school! Oh my. He can sing EVERY letter of the alphabet sound. It is SUPER cute.

When my sisters kids come, she has 2 boys that Ty is stuck right in the middle age wise. He loves to follow them around and try and do the things they do. They are much louder than he is use to but he tries so hard to participate. And Lexi, has a follower fast.

The little girl across the street goes to school with Ty 2 days a week. When we get off the bus at her house he says Eh, Eh (her name is Ellie) and points till he can shake her hand and touch her. Her mom is the Primary President so she sees him participate with the kids.

Last week in Primary, he stood up with the sharing time because his name was called. He stood up there during the sharing time holding a glove for the spirit and the body lesson. He sang the songs and all that fun stuff.

The last few days we have had kinda limited mommy.( she has been SUPER sick) and so we have read a lot of books. Tyler has been found doing something that I have NEVER heard him do.

He is saying

EVERY

SINGLE

FIRST

WORD

Tonight when he asked for food he signed Food and said the F sound. He was offered Waffles or Toaster strudels. After showing him the box backwards ( he was trying to look around at the box front) he looks at me, grins and says T - T. And runs off to play. Fully expecting me to give him the T T that he just asked for.

I did.. And he ate them.. All day long we have heard words ranging from B(arney), Chochoo for train, miKey mouse. ( he says Ke) He sings, he dances and he says SOUNDS, that resemble WORDS..... Yes SOUNDS that resemble words.

Prayers at night rock. Both Dallas and I go away feeling so good. He is so sweet. He says SHH for Sheena. And T for Tyler. And D for Dad and m for mom... He is getting it.

On a scale of 1-10 in my frustration level with it...... I am at a 4.... NOTHING pretty much. It is doing great.

Huge strides... Huge strides.

I want to figure out what is in his head and keep working till we get it all out... Who wouldn't want to hear what his miracle voice sounds like!

Go Tyler... Keep going....