YAY speech!

What a whirlwind of the past few months! We have talked about communication with Tyler a MILLION times I swear. The roller coaster dips SO low on that one. But I can honestly say that the upswing is going slow.... but going UP!

Therapy is going. Really.. just going. We don't see major strides in therapy. I don't know if it is the therapist or just the whatever. I don't know. He literally cries through most of therapy. The therapist and Tyler are like oil and water. I think they have had ONE productive session.

What I think is making a HUGE difference is his school and being around kids. Though we don't have my nieces and nephews much the little bit of time they spend with my brothers and sisters kids is making HUGE strides. And school! Oh my. He can sing EVERY letter of the alphabet sound. It is SUPER cute.

When my sisters kids come, she has 2 boys that Ty is stuck right in the middle age wise. He loves to follow them around and try and do the things they do. They are much louder than he is use to but he tries so hard to participate. And Lexi, has a follower fast.

The little girl across the street goes to school with Ty 2 days a week. When we get off the bus at her house he says Eh, Eh (her name is Ellie) and points till he can shake her hand and touch her. Her mom is the Primary President so she sees him participate with the kids.

Last week in Primary, he stood up with the sharing time because his name was called. He stood up there during the sharing time holding a glove for the spirit and the body lesson. He sang the songs and all that fun stuff.

The last few days we have had kinda limited mommy.( she has been SUPER sick) and so we have read a lot of books. Tyler has been found doing something that I have NEVER heard him do.

He is saying

EVERY

SINGLE

FIRST

WORD

Tonight when he asked for food he signed Food and said the F sound. He was offered Waffles or Toaster strudels. After showing him the box backwards ( he was trying to look around at the box front) he looks at me, grins and says T - T. And runs off to play. Fully expecting me to give him the T T that he just asked for.

I did.. And he ate them.. All day long we have heard words ranging from B(arney), Chochoo for train, miKey mouse. ( he says Ke) He sings, he dances and he says SOUNDS, that resemble WORDS..... Yes SOUNDS that resemble words.

Prayers at night rock. Both Dallas and I go away feeling so good. He is so sweet. He says SHH for Sheena. And T for Tyler. And D for Dad and m for mom... He is getting it.

On a scale of 1-10 in my frustration level with it...... I am at a 4.... NOTHING pretty much. It is doing great.

Huge strides... Huge strides.

I want to figure out what is in his head and keep working till we get it all out... Who wouldn't want to hear what his miracle voice sounds like!

Go Tyler... Keep going....

Please?

I came home from work tonight, tired and so sick of MEAN people only to find my inbox full and comments on other sites about how rude I am and yet it was totally misunderstood.

I commented on a persons blog about how I didn't understand how they didn't qualify for a specific medicaid waiver. Their son is on a trach. This waiver is for technology (trach) dependant kids.

I was not in any way saying that I felt this mother had LIED to others about their dire need to make ends meet with a medically fragile child. I was in no way ASKING or DEMANDING that she "prove" to me or any one else. I was HONESTLY shocked that they didn't qualify. The state only requires that the child have no assets. As a three year old, he definitely doesn't have a porshe.

The comment was taken that I was being rude. I was not being rude. When I was attacked about my comment ( 23 comments later) I defended myself. I was also told I left "rude anonymous " comments on another women's blog. I did leave a comment on a blog AFTER she made fun of short buses and I spent the night in tears over it and I told her I thought it was rude. That was over 2 months ago. 2 months.

Yet she still bashed me on this other women's site.

I received 57 emails total of women telling me I was rude, I purposely hurt my child, didn't have enough faith to "cure" him of his ailments.

I was told I didn't understand how this family could possibly have medical debt.

I was told I was uncompassionate and a horrible person.

I cried.

I am NOT a mean person. I am not a rude person. I have learned to stand up for myself and fight for my child.

I try so hard to help as many people as I can.

I would NEVER ever purposely hurt Tyler. EVER. I did not cause the blunt trauma to his shunt to cause it to break. I did not WANT to have a sick child. I didn't do anything to try and have a child with a disability so that people would feel sorry for me. I do not hurt him. I LOVE him and only want what is best for him.

I don't care if you don't like me. But PLEASE don't' ever think that I would HONESTLY think a mother isn't doing all she can to help her child. If you really think that, then you don't know me.

Please don't talk about me to other people if you are not willing to privately email me and tell me your concerns even after I have emailed and apologized to you.

Please..