Sleep- Revisited

I am hoping I won't have to knock on wood ( but really it can't get any worse than it already is/has/could be) but we have had a HUGE difference in sleeping since we got Toot's tonsils out. We changed a lot of things at the same time and we don't know exactly what it is that has made any difference.

After getting his tonsils out he slept with me for a week or so. When I was ready for my bed back we just started putting him in there. He did great. He seemed to sleep through the night and stay in his bed. Every now and then he would come in our room but not much.

Some of the things we changed right as he got his tonsils out:

1) We got him a new bed. He had been on his toddler bed. I am not sure if that was just not a good idea or if the mattress just stunk. He slept awesome in our bed once he came in.

2) We got him a bed set that he LOVES. He was in just a nice toddler bed set and then we found a Mickey Mouse bed set. He LOVES it. He helps me make his bed, he has to have his pillow a certain way. We thought it would keep him up but it hasn't.

3) We added white noise. When he was tiny we had a CD playing all night in his room. He still slept kinda blah but he slept OK. We have had a fan going in our room and he sleeps great in there. When he had his tonsils out we had to have a cold humidifier. It has some great white noise. Keeps his room cooler too!

4) We added Baclofen. While I didn't think of this as a big deal, I recently think I have changed my mind. When we went to see my parents last week he slept with me and I didn't give him his baclofen in the meds. He had a really restless sleep and would move all the time. Came home and started it back up and he was out OUT! Last night I forgot to refill it and he was up 2 times last night. He ended up in my bed and when I tucked him in and went to his bed he ended up back in there a few hours later. He tenses his legs the ENTIRE night. It really leaves marks at this point ( on ME) and is really sad for me to see. Tonight- Baclofen!

5) Our routine is a little shorter and still really strict. We do the SAME thing, every night. He says the same thing and he gets in the tub and gets to sing the same song every night. We have tried to push his bed time back but it isn't any help so 8 it is.

6) He got his tonsils out and he got the dose of Phenol. We have found as he gets tighter he sleeps MUCH worse. ( hence #4~) It makes us remember to stretch him a lot. Poor kid. I can't imagine how it feels to have tight muscles ALL the time.

He still gets his sleeping meds and the dose hasn't been changed. He has grown but not by much in the last year. He still doesn't nap in the day and when he does he ends up in our bed for the night.

He goes to sleep saying Mickey Mouse and wakes up asking for Mickey Mouse. We hope the sleeping continues. At least this is tolerable.

ENT

Mickey Mouse had his follow up Tonsil appointment today.

Oh wait. That was Tyler.

Our ENT is great. He is the HUGEST guy EVER. Like literally. Like a rolly polly bug with hair and glasses. But he is REALLY good with kids. Like super dee duper good. He never goes right for Tyler but goes right for whatever "friend" is brought with us. Mickey Mouse came today. Mickey went with us for surgery too!

Ty got to help him check Mickey's mouth and he told him WOW neat with the light. And then the UNTHINKABLE happened. Dr. Hill asked if he could see in Tyler's mouth with his new flash light and Ty did it. Yep! No tears.

Ty was officially released from the ENT. Unless there is complications later on or he breaks his nose again then we do not have to go back . This is the first time in 5 years we have been able to cross off a specialist on our list instead of add one!

And Mickey got a sucker.

Life without tonsils

Ty is still sick and crabby. He has a few good hours and then it is crying and sad and just plain sick. There are times throughout the day that he won't even swallow his own spit. He tries to talk to me and ask for something or say something and it just RUNS out of his mouth. At that point I realize just how little he is drinking and eating. I offer and offer and offer but he just doesn't want to swallow.

The other day he woke up screaming at about midnight. He was REALLY upset. We figured he was in pain. We only do Tylenol in the day and then loratab at night. Yesterday I made him take a nap and it seemed to help a lot by the end of the day. It made him get up around 5 am though.

Today, well today was another story. The 5 am started it all. Dallas was up so he took Tyler. I made the toot breakfast and offered a coke. YES a coke. He won't drink anything without fizz . The bad part, if I put ice in it and it runs out of fizz he wants more.

He didn't eat his breakfast. BUT he asked for pizza around 9:30 am so I made it for him. He pieced on it for 2 hours. Seriously 2 hours! Who does that?

I cleaned up my pantry and had swept the floor. Ty helped. It was in a pile when it started but he did such a great job!

He was sweeping it all around. The nice pile turned into this:
But soon he was over helping mom and off we went to watch a movie cause frankly it was such a HARD job. He got all settled with Mickey, Blanket and my computer.

See this thing he does with Mickey and his nose... he just has Mickey rub his nose. And then he has to make sure that Mickey is aware that he is ON TV.

Mickey is such a star!! He gets front row seating to all his events! And when movies are done he is quickly replaced with:

Undies were carried around when Mickey was not being used. When the camera came out Ty would count to three and say CHEESE!!

But at the end of the day he is EXHAUSTED. He cries, he is sad and most of all he doesn't feel well. He lays down on his frog and he gives it a squeeze.



And sweetly falls asleep!



He was later sweetly woken up but he was a bear. He hardly had anything to eat or drink and we sent him to bed dosed up on all the meds he would take. We hope he starts feeling better soon.

Oh... How we miss our Tonsils !

Day three

The doctor ( and moms) warned us about day three. Holy smokes they weren't kidding!

He was overall pretty good but there were a few times I really thought we were NOT going to make it through the day.

This morning 2 girls from our ward came over while me and Dallas ran to our appointment. We were gone for just over an hour. I had loaded him up with his pain meds about 45 minutes before they got there so he would be good for them. Lucky for them he was.

I made him lunch, which he didn't touch but luckily the girls were able to get a full Popsicle down him while they sat outside. When it was time for more meds it was so horrible to get them down. He cried, gagged and then settled in for a sweet little nap on me! ( oh and I had to hold him down and listen to that Garggling like he was drowing sound . BAD! )

Next round a few hours later was even worse and I had to take away his movies ( which about killed me!) I can't help but give him what he wants. Especially when he is sick. He was so upset about having to take the meds that he climbed on the couch and covered himself with his blanket. He really does think we can't find him if he hides.

He didn't eat much and we haven't seen much drinking but he did spike a small fever. We don't take his temperature because if we did I would be freaked and take his temp all the time. ( yes.. I know. CRAZY!) The Tylenol has been working when he will take it. Tomorrow I am going to try some Motrin.

We ended on a good note, but we always do when Dad is home. Plus he asked for Ice cream.

And what Ty wants... Ty gets!