Fun Friday- With Decubitus Ulcers on top

We try to make every Friday something that Tyler and Grayson can work toward. Usually it is a good activity like Bowling or swimming or some place or thing they have worked towards doing as a family. If he has days at school where he won't do anything or he yells ( turns out he yelled at his teacher and told her to shut up last week at school haha!) he doesn't get to do his fun Friday activity.

This last Friday we thought we would go swimming at a heated pool. He had to work for it. He almost lost it.... twice. And had I seen the paper that he yelled at his art teacher I would have said " Um no!!" but I didn't.

So after Shriner's Hospital we headed to the pool. We also picked the COLDEST day of the week to go but we had a good time. We took our neighbor friend, Sawyer. Grayson adores Sawyer and Tyler is a fish. He just goes and goes and does well in taking care of himself on the slides.

My sweet Grayson who just wanted to run and scream in his Paw Patrol Pants. 

Tyler and Sawyer. Ty was climbing back UP to the little slide.

Tyler soon decided that the regular slides were not enough for him so he asked to go down the big twisty slides. So him and his worker, Ciera, climbed up to the top 5 times and and he went down and LOVED it! The water was not overly warm but it was heated. But it was only 77 degrees outside. For us Arizona people, that is COLD!! We were super duper cold. Once Ty got cold his foot instantly turned in and he started walking on the top of it again. He was dragging it and just walking wrong. I carried him a bit, and Ciera carried him a bit. 

A side note about Ciera-


Ciara joined our little family over a year ago. We made a schedule with her that worked for all of us. And for some reason we have embraced having her here and we feed her for dinner and we do our night routine after we all have had dinner. So we sit as a family with her. She prayers with the boys, she eats the food. She helps with the boys and she is fabulous with Tyler. She climbed into the pool with him and cradled him around and just talked to him and did all that he wanted to do.

I feel truly overly blessed to have her working with our family. In fact, we have always been blessed. The last 2, Kelsey and Brynne we have LOVED them as well. Kelsey was just in a place she needed no  extra stress or hours and Brynne needed better and different hours. But for Ciera we work for her. We have hired some help for Ciera this summer but no one can take care of Tyler like Ciera can .

After we got home from the pool. Ty said that his foot hurt, but we got dinner going and did our dinner thing and didn't think much of it

Mother's day weekend came and Dallas asked me if I had seen his foot. I said I had not. I didn't look at it till Sunday and I freaked OUT!! His entire foot is open and back up to worse than what it was 2  weeks ago.

So that brings us to the Pressure sore.

When Tyler's feet got cold, he started dragging his foot and he peeled off a good chunk of his foot. So back to the podiatrist we went. we was really worried about it. But we went in and they opted to fix it with a laser treatment 4 times in the next ten days to get it to close faster. We do Antibiotic ointment and some bandages, after school we leave it open air so that it can harden up. His poor feet are truly the only thing he complains about.

This is the new sore. The Dry patch and the "spot" was the big one from yesterday's post!

So, this week we are praying that the wound heals fast for Tyler's foot. That we can do our best to keep it small enough that our surgery won't be postponed. 

I think we will keep our Fun Friday to bowling!

The Pool

When we were looking at houses to move into we thought we would want a pool AT our house. While I still think that would be awesome, I am glad we didn’t get one this time. The upkeep would be insane and very costly. But we have 2 kids who can’t swim. But we did want a community pool.

As we looked and found the house we wanted we were even more sold on the community pool. We were sold on the close little park that is covered too. We were also sold on our house and the street. We LOVED our neighbors, but they moved. Our street is lined with people from our church. It is a good place for us.

Our neighborhood pool didn’t get a visit from us until this summer. We didn’t go over when we first moved here because it was August and we were starting school but this year, we have made it. Once a week!

Here we are, enjoying the pool:

My red headed, fair skinned, curly haired  Boobie baby!

He will find a plane wherever he goes, or he will compromise. 

Ty is doing really well and enjoying the water. We burn our feet when we get out but we have a good time. This particular day we ordered pizza and met up with the pizza guy at the door. The boys devoured the food and Grayson took a nap. 

Summer is heating up fast around here. So middle of the day swim trips are slowing down. Next week we will be doing all 3 therapies, and having some testing done at PCH. But otherwise, stress and crazy schedules included, we will be busy. 

Todd and Amy and Oli

Last week was so fun and so busy! We made plans with Dallas' long time best friend and his cute wife Amy and cute kiddo Oliver. Oliver and Tyler are about six month actual ( but really 3 months) apart. Both of our kiddos have special needs. Seriously, it makes for the BEST time.

Amy and I made arrangements to fill up our pool and have a bbq on Thursday. ( * AMY!! next time we do.. Please remind me the next day k! Anyone for that matter) I am so forgetful but I remembered that they were coming. Just forgot the important part.

We filled up the pool, had a backyard full of people and after a while everyone but Todd, Amy and Oli were left. We were able to catch up. ( NEVER go 6 months with out seeing people that totally "GET" you) We laughed, and laughed and ohh and awed over the 2 boys play.

Oli doesn't have words. He understands a lot. He expresses himself by screaming. Tyler has sensory stuff against screaming and has a few words. The common ground between these two... THROWING. We aren't sure who is better but for sure they are the best combination.

Oli has great physical skills and Ty has great other skills so that makes them a perfect combination. It was great seeing Ty take Oli's hand and take him over to where the toy is that they were throwing. Oli would get it, hand one to Ty and start all over.

Them playing gave me and Amy a time to hang out and talk and feel like some one totally gets it. And our hubby's ran to the store for our dinner. They were able to spend some time together. After dinner were spent even more time together.

It was the best night for all of us! We both needed it. It got us good and ready to go to our camping trip.

Amy and Todd have been amazing compassionate people. They struggled with infertility for over ten years. Then they had Oli. We now have Tyler and infertility stuff and Tyler. So we both feel like we have someone who understands what we are going through. It is amazing to have someone who gets it from both ends of it!

Thanks again for coming over. Next time, I promise to get pictures!