Fun Friday- With Decubitus Ulcers on top

We try to make every Friday something that Tyler and Grayson can work toward. Usually it is a good activity like Bowling or swimming or some place or thing they have worked towards doing as a family. If he has days at school where he won't do anything or he yells ( turns out he yelled at his teacher and told her to shut up last week at school haha!) he doesn't get to do his fun Friday activity.

This last Friday we thought we would go swimming at a heated pool. He had to work for it. He almost lost it.... twice. And had I seen the paper that he yelled at his art teacher I would have said " Um no!!" but I didn't.

So after Shriner's Hospital we headed to the pool. We also picked the COLDEST day of the week to go but we had a good time. We took our neighbor friend, Sawyer. Grayson adores Sawyer and Tyler is a fish. He just goes and goes and does well in taking care of himself on the slides.

My sweet Grayson who just wanted to run and scream in his Paw Patrol Pants. 

Tyler and Sawyer. Ty was climbing back UP to the little slide.

Tyler soon decided that the regular slides were not enough for him so he asked to go down the big twisty slides. So him and his worker, Ciera, climbed up to the top 5 times and and he went down and LOVED it! The water was not overly warm but it was heated. But it was only 77 degrees outside. For us Arizona people, that is COLD!! We were super duper cold. Once Ty got cold his foot instantly turned in and he started walking on the top of it again. He was dragging it and just walking wrong. I carried him a bit, and Ciera carried him a bit. 

A side note about Ciera-


Ciara joined our little family over a year ago. We made a schedule with her that worked for all of us. And for some reason we have embraced having her here and we feed her for dinner and we do our night routine after we all have had dinner. So we sit as a family with her. She prayers with the boys, she eats the food. She helps with the boys and she is fabulous with Tyler. She climbed into the pool with him and cradled him around and just talked to him and did all that he wanted to do.

I feel truly overly blessed to have her working with our family. In fact, we have always been blessed. The last 2, Kelsey and Brynne we have LOVED them as well. Kelsey was just in a place she needed no  extra stress or hours and Brynne needed better and different hours. But for Ciera we work for her. We have hired some help for Ciera this summer but no one can take care of Tyler like Ciera can .

After we got home from the pool. Ty said that his foot hurt, but we got dinner going and did our dinner thing and didn't think much of it

Mother's day weekend came and Dallas asked me if I had seen his foot. I said I had not. I didn't look at it till Sunday and I freaked OUT!! His entire foot is open and back up to worse than what it was 2  weeks ago.

So that brings us to the Pressure sore.

When Tyler's feet got cold, he started dragging his foot and he peeled off a good chunk of his foot. So back to the podiatrist we went. we was really worried about it. But we went in and they opted to fix it with a laser treatment 4 times in the next ten days to get it to close faster. We do Antibiotic ointment and some bandages, after school we leave it open air so that it can harden up. His poor feet are truly the only thing he complains about.

This is the new sore. The Dry patch and the "spot" was the big one from yesterday's post!

So, this week we are praying that the wound heals fast for Tyler's foot. That we can do our best to keep it small enough that our surgery won't be postponed. 

I think we will keep our Fun Friday to bowling!

Do's, Day Labor and Dinner

Things have been going OK today. Dallas needed to get out of the house and headed out on a little road trip. He found a little lake and fun place to play that we might just have to try out. He enjoyed the time out and me and Ty kinda just hung out at home.

Dallas wasn't gone to long when he called to see if I was "decent." I informed him I was and he told me he was on his way home after he stopped at the circle k in the next town down to pick up a day laborer. We had kinda joked about it before and even had talked about him getting one to pull the weeds in the yard ( they tend to be gone one day and back the next in full force... thicker and darker than the last ones) and with the week that we have had we were not in the mood to go out and deal with pesticides, Tyler and pulling them.

I kinda laughed and waited for him to get home. For those that don't know about Day laborers let me tell you what it is like. Every day and in random places through out the city you can be driving down the street and see a bunch of immigrants ( usually illegal and from Mexico) standing on the side of the road. Some of them have lunch boxes, all have water and they are waiting for someone to stop and offer them some kind of work. Some don't ever get picked up but they wait. I feel bad for them but they can't get work legally. Those who know Dallas and his opinion and thoughts about illegal immigrants can also find this almost as funny as I did.

As he got home he had me open the door in the back and sure enough his day laborer was there. I have NO idea how these two communicated because D speaks NO Spanish other than the normal "make fun of Spanish" that most know. I was half tempted to try and help with the translating but left the directing to Dallas. I did sneak in a few photos. They are NOT great ones but I didn't want him to get scared that we were connected to INS.

He was a wonderful worker and we made sure that we paid him VERY well for his service. He was working for about an hour. Dallas took him back to the circle k. I do hope that his family is taken care of. ( as much as I am not cool with the idea of illegal immigration, I do have respect for those who work hard for their income and are able to feed their family regardless of their citizenship)

When Dallas got home I asked him to help me "fix" the hair cut from Dr. Elton. I got out the clippers and we set out trying to distract Tyler enough to cut his hair. It was a disaster. So instead of being gentle with it and wait for him to be OK with it I just went at it. I got all the front done and he was NOT having me do the back. We had to stop for a bit and wait for him to calm down then we went at it again. I was so glad that we got it done. Ty spent the rest of the afternoon rubbing on his head. There are a few places that have LONG hairs and what not but overall it looks much better.





The one bad thing about having Tyler so bald is that you can see EVERY scar that he has on his head. It makes him even more amazing to me!

Dallas decided to shave off his hair as well so both him and Tyler are sporting the super bald look. I was a bit jealous so I decided to go and fix the mess that I had with my new hair cut. All of us look nice and cleaned up.

Dallas took us all out to dinner at red lobster with my birthday gift cards and I was able to enjoy a lovely night of endless shrimp. Tyler showed us who's kid he REALLY was and ate TONS of my shrimp scampi. He was a wonderful kid.

He is doing very well and we are so proud of him.