Tyler is on Fall Break and so is Grayson. Because we have such a long Fall Break we decided we would attempt something we have NEVER done and drove to Utah. We will be here until we decide to go home!! Hit me up if you want to hang out.... But better hurry, our Salt Lake Schedule is filling up. We can't wait to spend it with Oli, Amy and Stephanie and the few others on our list........
P.S. The weather is DIVINE you Arizona boiling people
Showing posts with label adaptive schooling. Show all posts
Showing posts with label adaptive schooling. Show all posts
Sunday, October 5, 2014
Thursday, September 4, 2014
It's a sad fact ... but a fact
Tyler is turning 9. This kid LOVES birthday's. When it hit Sept.1st he got all excited that it was his month and that we would be having this awesome party at his favorite places with balloons and party hats etc. I didn't have the heart that it would BREAK my heart to do that to myself this year. But I didn't tell him no.
So, I went to 800 of my closest Facebook peeps and asked them to share a photo. This photo:
So, I went to 800 of my closest Facebook peeps and asked them to share a photo. This photo:
You see, Tyler has been invited to one persons birthday party in his whole 9 years. Every party we throw for him we invite his entire special needs class and hire extra respite and state workers to help us with any extra need that we could have. And yet no one shows up. No one even RSVP's. So last year, we rented out a lane at Flip side and waited to see of the 11 kids in his class, who was coming. No one showed up. It was me, his respite, his dad and his brother. I was heartbroken.
But in true Tyler fashion he said that is ok. We can still have a good time. But I was broken.
This year we have been trying to figure out what to do and where to have a party, Ty is not satisfied with just something here with Cake and us. He wants to go to the trampoline place, or the bouncy house place or the indoor play place. He wants to invite all his friends. But what mom dares tell him that there is no one that will come.
As hard as it is, we have but few friends for a kiddo like Tyler. He likes things that a normal 4-6 year old would like. Not what a 8 year old would like. He is socially not where he should be. So how do you tell your innocent kiddo, that it isn't going to happen.
Well I can't. So, please download the photo and share his story. Send them back here to see what he is all about. Lets give him the "Surprise party" he deserves to have!
The address is incorrect on the flyer. Because of my school deadline I don't have time to fix it, but his address is 18902 e kingbird.
Sunday, September 22, 2013
What a LONG month this has been. I have started a ten blogs about the stuff we have been doing and finished none of them. Something always comes up, or I get frustrated or the inner conflict I keep having always seems to make it so I don’t want to push publish.
T’s school year has been going. Not awesome like I had thought it would, but not so bad either. We have had some major complications with communication and major frustrations in trying to figure stuff out.
Ty had his testing done for second grade and he got 3’s out of 4’s. So he is on task for a 2nd grader in most stuff. Of course the take into account that he can’t write and that he can’t do some of the things he needs to on his own. But overall he is doing really well. Our first biggest challenge is getting them to follow his IEP. Some of the things are being over looked. I am sure not on purpose, but none the less, still being over looked.
We are also working with him on math. He is slowly grasping the concept of it but they are learning touch points and we have had to learn to adapt his ability to figure out the touch points. I tried coming up with a great idea and he seems to be catching on, for the most part.
He has done really well, he just doesn't love homework. Plus he has to do homework after we have him therapy all afternoon after school. Sometimes I am sad he just can't be a kid. We will see how well he tolerates the "normal" activities of scouts that comes after an hour of Physical therapy.
Our success of having his seizures slow down was slow lived and we are back to the drawing board and having to up his meds to a WAY higher dose. It kinda makes me sick to shut the door at night and turn off his shows because I never know if he will wake up in the morning.
We celebrated his birthday this week. I was going to do a birthday post but am going to skip it this year. There are to many private emotions that I don't want out there for others to make fun of me over ( and YES sadly there are people that would do that) and I would rather have them in a more supportive forum where those people are NOT invited to be.
However, he turned 8. Had an amazing time and three days later we are still having birthday activities. In 3 weeks he while have his baptism and we will have cooler temps and Halloween to look forward to.
Overall, we just keep plugging away. I will gain 12 hours more "work" this upcoming month and can't wait to have all my hard work FINALLY pay off. But it will and I am more determined ( thanks to those who aren't all that supportive) to succeed and keep on going. Our five year plan might even be shorter since I am more "complete" than we thought.
Oh and it looks like we will probably be in Utah again in November for a gait study ( for 2 of them) bike measurements and phenol. Then three weeks after that we will be having botox here. Next week we do orthotics and therapy and well baby checks for everyone. Guess that means flu shots all around.
T’s school year has been going. Not awesome like I had thought it would, but not so bad either. We have had some major complications with communication and major frustrations in trying to figure stuff out.
Ty had his testing done for second grade and he got 3’s out of 4’s. So he is on task for a 2nd grader in most stuff. Of course the take into account that he can’t write and that he can’t do some of the things he needs to on his own. But overall he is doing really well. Our first biggest challenge is getting them to follow his IEP. Some of the things are being over looked. I am sure not on purpose, but none the less, still being over looked.
We are also working with him on math. He is slowly grasping the concept of it but they are learning touch points and we have had to learn to adapt his ability to figure out the touch points. I tried coming up with a great idea and he seems to be catching on, for the most part.
He has done really well, he just doesn't love homework. Plus he has to do homework after we have him therapy all afternoon after school. Sometimes I am sad he just can't be a kid. We will see how well he tolerates the "normal" activities of scouts that comes after an hour of Physical therapy.
Our success of having his seizures slow down was slow lived and we are back to the drawing board and having to up his meds to a WAY higher dose. It kinda makes me sick to shut the door at night and turn off his shows because I never know if he will wake up in the morning.
We celebrated his birthday this week. I was going to do a birthday post but am going to skip it this year. There are to many private emotions that I don't want out there for others to make fun of me over ( and YES sadly there are people that would do that) and I would rather have them in a more supportive forum where those people are NOT invited to be.
However, he turned 8. Had an amazing time and three days later we are still having birthday activities. In 3 weeks he while have his baptism and we will have cooler temps and Halloween to look forward to.
Overall, we just keep plugging away. I will gain 12 hours more "work" this upcoming month and can't wait to have all my hard work FINALLY pay off. But it will and I am more determined ( thanks to those who aren't all that supportive) to succeed and keep on going. Our five year plan might even be shorter since I am more "complete" than we thought.
Oh and it looks like we will probably be in Utah again in November for a gait study ( for 2 of them) bike measurements and phenol. Then three weeks after that we will be having botox here. Next week we do orthotics and therapy and well baby checks for everyone. Guess that means flu shots all around.
Sunday, August 4, 2013
Summer is coming to a close..........
I am SO, so glad that we are starting school in just a few weeks. In true fashion, someone in the house is sick! Just a summer cold but none the less, we are all ready to go.
Ty has grown up so much this summer. Not just emotionally, or socially but also PHYSICALLY! Holy cow, we hit 50 pounds just after we moved to Arizona and we dropped back and forth for a while. At our neurologist appointment on Monday we were officially 57 pounds. He is 4 feet tall. He has a bit of a belly that I LOVE and his cheeks are fully. When we asked him what got him to grow, he answered us “ All the pizza I get to eat!” and boy was he not kidding.
One reason that I love school for Tyler is SCHOOL LUNCH!! Last year I really worried about what he would eat at school lunch. After a few home packed lunches, I stopped. He needed to come home hungry and then he would eat what we cooked him for dinner. Plus they get pizza a lot at school so I know he won’t starve. So we are looking forward to having a school menu on the fridge again.
This year they are asking that I provide him with a daily snack and we are excited to have him ask us for fruit cups. So we are going to bring in different types of crackers and fruit cups. He loves pineapple and all other stuff too. So why not!
We also get homework. So I am looking to see if I can capture his attention in chapter books that we can read a chapter and have a week long book. Or something that is awesome for him to want to read. 30 minutes of reading the same books over and over means we need to take a trip to the library.
We are also looking forward to the schedule that school brings us. This year we have all three therapies out side of school, that we will be trying our hardest to keep into our schedule. We will be having on therapy at the beginning of a school day so he will need me to take him to school. And another day he will have to leave a half our early. And to get an extra hour of all his therapies he will be getting OT at home in the evenings. This is such a well needed change for him to get so much extra therapy.
We have some major testing going on in the month of August for epilepsy/seizures and hospital stays and of course, Med Changes. What wouldn’t a stint in the hospital be without some major med changes.
But mostly we are excited for Tyler to go back to school. Where he can be Tyler and be social and be amazing. Like he always is.
We will miss him like crazy, but I am sorta, kinda looking forward to being back with Grayson. We have a lot of changes on the horizon and we have a lot of exciting things that we get to do with Grayson. We have lots of little field trips and learning stuff.
And just to end the night/day/post with awesomeness. Here are some photos that we have taken the last few weeks with Tyler and Grayson.
We were walking into the Flying fairy school to meet his teacher and we had Ty’s chair. Grayson wanted to ride too. Ty isn’t always a fan, but Ty said he would be nice enough to let Grayson sit on his lap. They were so cute. I wish they made Adaptive strollers for Tyler to have a rider!
After therapy if Tyler earns something at therapy we either hit up a gas station, the dollar store or another awesomeness, we decided to try out the local new McDonald's with a play area for toddlers, which is usually up BOTH their ally’s. But first,Grayson said “ Mommy prayer? *insert lots of mumbling* AMEN”
We will miss the mornings of watching Tyler eat and play while Grayson relaxes and plays Planes.... right?
We are looking to our second year at the Flying Fairy School. It will be a GREAT year... We can feel it!
This weeks posts:
Ty has grown up so much this summer. Not just emotionally, or socially but also PHYSICALLY! Holy cow, we hit 50 pounds just after we moved to Arizona and we dropped back and forth for a while. At our neurologist appointment on Monday we were officially 57 pounds. He is 4 feet tall. He has a bit of a belly that I LOVE and his cheeks are fully. When we asked him what got him to grow, he answered us “ All the pizza I get to eat!” and boy was he not kidding.
One reason that I love school for Tyler is SCHOOL LUNCH!! Last year I really worried about what he would eat at school lunch. After a few home packed lunches, I stopped. He needed to come home hungry and then he would eat what we cooked him for dinner. Plus they get pizza a lot at school so I know he won’t starve. So we are looking forward to having a school menu on the fridge again.
This year they are asking that I provide him with a daily snack and we are excited to have him ask us for fruit cups. So we are going to bring in different types of crackers and fruit cups. He loves pineapple and all other stuff too. So why not!
We also get homework. So I am looking to see if I can capture his attention in chapter books that we can read a chapter and have a week long book. Or something that is awesome for him to want to read. 30 minutes of reading the same books over and over means we need to take a trip to the library.
We are also looking forward to the schedule that school brings us. This year we have all three therapies out side of school, that we will be trying our hardest to keep into our schedule. We will be having on therapy at the beginning of a school day so he will need me to take him to school. And another day he will have to leave a half our early. And to get an extra hour of all his therapies he will be getting OT at home in the evenings. This is such a well needed change for him to get so much extra therapy.
We have some major testing going on in the month of August for epilepsy/seizures and hospital stays and of course, Med Changes. What wouldn’t a stint in the hospital be without some major med changes.
But mostly we are excited for Tyler to go back to school. Where he can be Tyler and be social and be amazing. Like he always is.
We will miss him like crazy, but I am sorta, kinda looking forward to being back with Grayson. We have a lot of changes on the horizon and we have a lot of exciting things that we get to do with Grayson. We have lots of little field trips and learning stuff.
And just to end the night/day/post with awesomeness. Here are some photos that we have taken the last few weeks with Tyler and Grayson.
We were walking into the Flying fairy school to meet his teacher and we had Ty’s chair. Grayson wanted to ride too. Ty isn’t always a fan, but Ty said he would be nice enough to let Grayson sit on his lap. They were so cute. I wish they made Adaptive strollers for Tyler to have a rider!
After therapy if Tyler earns something at therapy we either hit up a gas station, the dollar store or another awesomeness, we decided to try out the local new McDonald's with a play area for toddlers, which is usually up BOTH their ally’s. But first,Grayson said “ Mommy prayer? *insert lots of mumbling* AMEN”
We will miss the mornings of watching Tyler eat and play while Grayson relaxes and plays Planes.... right?
We are looking to our second year at the Flying Fairy School. It will be a GREAT year... We can feel it!
This weeks posts:
- Neurology’s second first opinion.
- Ten things Special needs finds.
- Selective reduction....... is it OK for you, but not for me?
That’s right folks.We are getting back to talking about some random stuff and and somewhat controversial topics.
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