Monday, June 28, 2010

Talkin' Tuesday

I have found a few new blogs this past little bit and I decided that I wanted to participate in the Talkin' Tuesday. It really got me thinking today.

The Question of the week was " What has change since having kids?"

My answer : My dreams changed when I had a child. Tyler has cerebral palsy. Everything changed.

Though my dreams have changed there is something about his spirit that will NEVER change. For that I am thankful.

When I was pregnant I thought of the time when we would have fun 4 year old conversations, him crawling and walking when he was one, jumping on the trampoline with his cousins and laying on the grass watching the clouds or stars or even fireworks.

All that changed when we had him early. Change doesn't mean they didn't/haven't happened but it means they are not how I envisioned them in my mind.

Funny conversations are not full on conversations. Little words now and then that make the day fun and funny. But the WORDS make it funny because there is no combined or back and forth conversations. The words that do come out are GREAT and every single one of them is WELL earned.. for mom and child!

I definitely took the idea of communication as something that "just happens" and appreciate the words SO much more!

The crawling and walking thing was more of something that would happen so the " five year plan" would play out JUST like I had it in my head. You know, the one where you have a baby, they advance and 2 years later you have baby #2 and are done. You buy a house, buy cars, save for their education and go on fun trips to Disneyland. Instead we got therapy, brain surgeries, brain damage and LOTS of medical debt. The " five year plan" kind of went to crap but we are SO proud of the work he is doing and the advances he makes.

Jumping on the tramp... oh vey! Yeah well when you can't stay on your feet jumping up and down is NOT going to happen. I try to shelter him from the things that I KNOW he can't do but want to or we find a way to adapt. Currently our adaptation is to have a trampoline in our living room. ( No I am not kidding!) But what I also have is a wonderful Niece who tries to include Tyler in EVERYTHING. Lexi is SO cute with him. The neighbors girls do the same thing. He is obsessed with the trampoline at their house and September and Ariel are amazing for helping him jump ALL the time.

Laying on the grass watching the sky. I envisioned warm sunny days watching the clouds go by, laughing at the shapes in the sky. I envisioned 4th of July, sitting on the grass saying "OOHHH and AWWW." Instead Ty can't see them. He has never seen a bird, never seen an airplane fly by ( he Hears them but not see them) he can't see the sun or the moon.

We don't know what he can see but there isn't any awwing from him. His sensory issues with sound prevent it. But we can give him as full of a life as possible and point them out even if we can't see them.

Time consuming, love consuming and all consuming. That is Tyler.

What payment do I get? Love, kisses, hugs and admiration. A shadow. A buddy and most of all an amazing son!


anne maskell said...

Hi, I'm visiting from 2sdays party, and I'm your newest follower. Your son sounds like a true joy. I have read a few of your posts, and I am overwhelmed by your strength and fortitude. People can be so judgmental about things they don't understand! You are so blessed to have your extraordinary son, and he is equally blessed to have such fine parents. All the best to you and your family,now and in the future.

Grandma Labrum said...

Glad to see he is playing with at least one of his purple friends. He looks so happy with Barney.

Belly Charms said...

What a precious miracle little boy. I a your newest follower... to keep up with him. My younger sister has brain cancer so I too believe that with strong faith miracles can happen!! Thanks for going in today.

Bree said...

I am so glad you linked up! I hate that any child has to have challenges but I do appreciate learning more about it from a mom...I look forward to more connections with you! Thank you- Miracles do happen- Mountains can be moved!