Showing posts with label mulilevel surgery. Show all posts
Showing posts with label mulilevel surgery. Show all posts

Tuesday, July 7, 2015

It's not easy being green....

Ty's feet had a rough go for a few weeks. Something about his feet were making a HUGE stink. We could smell him clear across the room. They were so gross. We tried everything we could. We even put him in his cast galoshes and put him in the tub and SCRUBBED... But we might have made the problem worse.

A few days after the big scrub down the smell got even worse. With a phone call to a friend in Washington DC a little bird put a thought of infection into my head and I called the doctors office. The doctors office blew me off three times.  Finally the last time they decided that we could come in and they would take a peek and see if maybe his casts had gotten wet or there was infection. I told them the stinky foot was the one where we had done the most work on his feet and his tibia, but that didn't sway them to take me any more serious.

After a convincing 48 hours of waiting ( meaning I called and left a message and it took 2 days to get back to me) I was able to get them to agree to see us right after lunch. The cast dude came in and got us and got us started in taking off the stinky foot to see what was going on.

Dr. Emily was summoned and I joke with her that we smelled funky but come on in... and then the big reveal happened. Tyler's foot had gotten so wet that his foot had some how grown mold all over his foot. Not just mold but black and green mold. It was HORRIBLE.



This foot has the most work done and the most plates and stitches that are under the casts and I was horrified when I saw what was under the casts. So was the Doctor.  She admitted him to get antibiotics for the afternoon while we got his feet dried and scrapped. He was one mad dude. 

The white stuff is the wet feet stuff. The black stuff is mold and dried blood and the green stuff is mold. We cleaned around his incisions. We re taped his incisions and she inspected his foot. She rubbed antiseptic stuff on it stuff on it, waited for it to dry and the other foot was taken off. A small amount of mold was on the other foot and we started the process again. Grayson was there and I didn't get a picture of the other foot but did get a picture of them working on him. 




After about 6 hours we were able to leave and go home. Tyler was put back in casts for the remaining 2 weeks. He opted for Green this time. He said it was for Oscar the Grouch. Not sure that he was really aware that green was GROWING on his feet.  In 2 days we get his casts off and as soon as we get  them off we run down to our favorite orthotic people and recast ourselves for a few minutes while we get our new braces done. Tyler has to stay off his feet until we get our braces off, but we are hoping we are able to at least start moving a little.

At least now we can "legally" have a bath and enjoy a bit of bubble baths while we get ourselves ready for school in 2 weeks!!!

Monday, June 8, 2015

Recovery


Getting Tyler home was so nice. The day we got him home, we were still figuring things out and Grandpa had to leave to go home to our grandma. We were saying our prayers for the night with Tyler and he was asking to please bless our "Creaky Grandma who is awesome and old." We all busted up a bit. Poor lady. She really does feel old.

Grandpa was sad to go, but Grayson was pretty sad too. He had Grandpa to himself a lot. Which we are SOOO thankful for. Home was where Tyler finally ate some food. We were worried about his food, but he did so much better at home.

The only big problem we faced at the beginning was some constipation issue with Tyler. So we mixed a lovely drink of Poo Pepper. Fortunately for me, Tyler and Grayson both consumed a large portion of mixed drink. Finally, after a trip to the pediatrician's in which Dr. Auxier just giggled and laughed like a school girl, and telling me good luck and to double the dose of Poo Pepper. He then laughed, brought in a LARGE bag full of chuck's pads and said I would need these and don't forget to double diaper.  HAHA to him. BOOOO

Learning to get around the house and the park and the car and the store is a HUGE chore. He doesn't want to do anything but play on the iPad. He is a happy camper to spend as much money as possible in the app store.

The first 2 days were hard on him and he kept trying to get up. He fell off his bed a few times and the couch as he tried to stand up. But there is nothing there to hold him up. He is a fast learner and a fish out of water :) 
My son has a problem. It's called #determination and #stubbornness and won't believe us that he can't walk. #ugh #cerebralpalsy  #broken #multilevelsurgery #strong
Grayson was just chilling waiting for me to come get the stink who got off his bed on his own .


Sorry it's terribly blurry but no pain meds for the entire day. Up in the big chair. Meds at night only. Wahoo #lovehim
And to sit in a big chair to get him off his bum. But he was a trooper. But he was still stubborn and would try and do what he wanted to do.

Getting out the door is almost a laughing on the floor joke. But we have done it a few time. It gets a bit easier but the whole wheel chair thing doesn't. 

We had our Speech and OT start back up and we need to take a bit of time and get the PT back here to work on our core strength. He has no core muscles and if we want him to have some now would  the time. 

So we are 2 weeks at home with recovery..... and we are still working out the kinks. 

But welcome home buddy!