Thursday, May 27, 2010

We have till six

When we had Tyler we were not worried about his talking.We knew he would be OK. And we truthfully thought that words would just come.

Instead we really worried about his mobility. We did extra therapy to get him moving. We moved therapists when they told us that she didn't think he would walk. We encouraged him to move even if it was not a perfect gait.

Around 2 there was still no words but mom. There was more and more frustration. As time went on 3 came and went and still no words.

Moving back to Utah part of the reasoning was to get him around other kids ( like cousins that we would see much more frequently.. we had hoped) and sure enough. Just after Christmas we got a few words.

We go to therapy in Salt Lake City ( up around the U) and we sit through a 3o minute session then dive into Physical therapy or Occupational therapy or both. That leaves us there about 2-3 hours every Monday. It is a 100 miles round trip. Then through out the week we have our regular Doctor appointments. ( We see 9 specialists a Year. Some are every six weeks)

Something clicked in the last six months. I am not sure if it was school or just him. But we officially have WORDS.

Some words are only first letters of the objects he happens to be describing. Some of the words are not pheoneticly ( even spell check can't get that one right.. sorry!) correct. Sometimes he breathes in instead of out. But his point is getting across.

And the FUNNY side. He can spell. He can't say the word but he can spell. He can Spell Tyler and Mouse.

(I will try my best to share his words and how they sound)

DAAAD ( its really drawn out but it was the only way we could get it loud)
Key ( mickey)
Ick ( Nicky)
Gun ( signing more for Morgan)
x ( the sound for Max)
Ko ( koy)
K ( Kayden)
ex( Lexi)
pizza ( the z is said breathing in and spaced from the rest of the word)
doe ( done)
Ball ( signing at the same time)
All the animal sounds ( that are normal any way)
GiGi ( grandma)
Pop pop ( grandpa)

The whole alphabet and most of the sounds. And many many more. We are even starting to string several words together. It is VERY exciting to hear words.

If you spent time with Ty... You will start to see that new personality and lots of new words and when he can't get his point across a very frustrated little boy. But we have words.

They say speech needs to come by 6..... So I hope we keep going!


Andrea, Mrs. said...

And purple--right? You said he can say purple!

This is wonderful news. Glad to hear it!

Preemie Miracle said...

He can say purple.. he can say a lot more on the list. My favorite... poor Tyler

Janet said...


Looking for Blue Sky said...

Great news! Didn't know that 6 was considered a deadline, what happens if no speech by then I wonder....

Preemie Miracle said...

If they don't talk by six then the chances of "inteigible" talk is diminished. But if we can get words and sounds before then, it gives or therapist something to work with.

Amber said...

YAY TY!!!! You are talking so much better!!! I can't wait to here all of his words when I come in August. SLY!!!!

One Cluttered Brain said...

You have to go to therapy at the U?
I totally used to work on the REhab unit at that hospital. AWESOME REHAB unit.
If you don't mind me asking, who is the therapist that works with your son?

all of them are good.

Who is stalking who now? HA! :)
it was great to see you at CBC!

Megan B ♥ said...

Awesome!! Those are great words and such great progress!