I always thought I would know what to say. Always wondered if I would be witty, smart mouthed or even offended. I even wondered if anyone would say anything.
Of course that was when he was tiny. When he looked just like any other little baby. ( minus a few battle wounds on his head and oxygen) But he looked just like any other kiddo.
After Shunt surgery we often had looks or stares, especially when we had bad hair cuts done by neurosurgeons but really not many people come right out and say something or ask. Usually it is a point and a whisper or a loud look at that.
Sometimes in the store you have a nice old lady who tries to get Tyler to talk to her and he usually just waves and no words. A quick explanation that he doesn't talk but his name is Tyler usually suffices.
But not yesterday.
While we were waiting in line ( at the SLOWEST lady in walmart) A man started talking to Tyler. Ty was unusually friendly and started kinda babbling to him. His babbling isn't really "words" or even sounds of words but one sound. The man was very nice and kept trying to engage Tyler. Then came the big question.
What is wrong with him?
It was innocently asked. And I surprised myself. I wasn't even remotely upset or offended. In fact it was refreshing.
His question started about his eyes ( like I said we were really in the slowest line at Walmart) He asked if Ty's eye was a lazy eye. My explanation: " No he is almost legally blind so his eye moves to compensate for some of his eye sight being damaged." He asked how it happened. My answer again was simple.. He was born way to early. His questions persisted. I explained Tyler was born just under 2 pounds. The man looked at me and said,
" Wow, I have never met a mom raising a miracle."
He turned around and told another lady behind him that Ty was one pound when he was born. He was so proud to share that MY kid was a miracle.
A few blog posts that I have seen recently has had some really mean things regarding feelings of raising a special kiddo like Tyler. YES, my child has many disabilities. Yes, as we get older he "looks" like he has many disabilities. Some days I am fine with it, other days I could do without our *issues.* But just like a stranger, my son is a miracle.
Every single milestone makes me smile. Every single missed milestone made me cry. He is a wonderful kid and is doing so much. I am thankful for the things he is doing and hope to see him grow and learn and advance. Will things still make me cry? yep! Will I still wish for talking and long drawn out sentences? Yep! I won't ever stop hoping for that day when he does all those things that I dreamed he would do.
After 4 years and million tears and a long walk in the world of Holland I can say that the trip has its beauties!
Did you know that I am lucky enough to be raising a miracle?
Ask the guy at the grocery store!