If I had a million dollars I would donate to Shriner's hospital. I posted about our experience last year and found this year to be filled with the same Spirit. It was amazing and looking back I can't believe how well Tyler is doing and how much he has grown.
( That was Ty last year and this is Ty this year not at Shriner's since we were busy)
We made our appointment last year and waited for the card in the mail. It never came. Apparently after we were casted for our AFO's the appointment was about 3 months after our original so Rudy canceled it for us and rescheduled.
When we outgrew and some how became the Houdini of Brett's practice ( Ty is the first kid in Brett's career to find a way out of his braces) we were looking at getting the titanium braces that I talked about a few months ago. The problem that comes into play is the cost and the fact that no one pays for them.
At the appointment we were able to show everyone how well Ty walks and how well he is doing. We met with a NP ( nurse practitioner) and talked with her about our options. She was very nice and Ty was nice enough to tell her "no no" as she touched his feet and moved his legs around. We showed her his feet and how they are starting to turn in and she got excited. Not excited that they turn in but because he may be a prime candidate for some different types of treatment used in Cerebral Palsy.
The Doctor came in and Ty also told her "no no" and she continued to see how much range of motion he had in his ankles and then asked if he followed directions to which I told her he did. She asked him to walk up the hall. He got down from his chair and headed out the door. You never have to ask him twice to leave a doctors office. He was off and into the hall running if you will) and EVERYONE was out looking at him. He was so cute. Brett and Barb came out and were smiling like crazy.
There are several options that we will be looking at for Tyler in the next few months. We are excited to hear what the specialists here in Phoenix say and also the ones in Utah. We have a lot to digest.
* A special Thanks to Barrett and Chantel for letting me bug them. You gave me some great information along with some great links for research. It was so nice to have someone to give me the information.
And Chantel for letting me borrow him on his night off! *
1 comment:
Ty is such a handsome little man
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