Dr. Gooch

Dr. Gooch is our physiatrist. She does botox, phenol and refills our baclofen. She is always wanting to know what we can do to be better. What can we do to increase this or that? What can we tweak to make this work easier?

Sometimes she is a Little off her rocker and her coffee gets spiked wit mean stuff. This time a happy nice pill was slipped. This is the best visit in over 2 years. No tears were shed. She told me I was doing great as a mom. She wanted me to have her publication of plasticity and I took it. She said we have done everything right.

She also put down in BIG black letters. THIS CHILD WILL BE GOING TO MAIN STREAM CLASSES. He WILL NOT BE GOING TO A LIFE SKILLS CLASS UNLESS IT IS OVER HER DEAD BODY.


Better believe that we will make sure that is brought up. Officially , we are going to our home school and we are VERY excited about it.

Next post I will share some of the plasticity she was talking about. Awesome read!!

Prematurity Awareness 2010

September 21, 2005 changed my life. Not only did I become a mom to a beautiful little boy, but I joined a club of moms of premature infants.Tyler was born at 25 weeks and 3 days. He was small for his gestation and was 1 lb 11 oz. He was 94 days early. He is a fighter. Because he didn't get his full 40 weeks he had to fight.

5 years later he is still fighting.

Prematurity changed his life. Because of his early birth he suffered grade 3 and 4 brain bleeds. Those bleeds inflicted such a wound that he has hydrocephalus from it. He has ROP which has left him almost legally blind and he has Cerebral Palsy. The bleeds caused damage and the Cerebral Palsy is a result.

Prematurity has left him strong, stubborn, cute and a MIRACLE.

As a 5 year old, we may not be "caught" up but strides have been made. Tyler started talking in July and has full on sentences. He walks. He LOVES school. He LOVES kids and he is amazing.

He gets anything he asks for and he really wants to have a sister.... soon.

Prematurity is something that effects 1 in 8 babies.

It is the NUMBER ONE KILLER of babies.

The cost of having a premature infant is TEN TIMES more than that of a typical newborn.

ROP is one of the leading causes of blindness in infants. It is ONLY found in Premature infants. Those infants are under 30 weeks gestation.

Know the signs of preterm labor and CALL or go to the Emergency room

Powered by Linky Tools

Click here to enter your link and view this Linky Tools list...

It takes JUST one person

Video Courtesy of KSL.com

It takes one person to change the life of someone else. These 2 young men are amazing. Mac and Cameron are best friends. Cameron has Cerebral Palsy. He can't walk or talk. But Mac helps him be involved in EVERYTHING.

Max pushes Cameron in his cross country races so that he can be apart of it too. He is even going to run 2 marathons before they leave for their missions.

The mom of Cameron has that look that I know. The look of Love. The look that this one person, who doesn't understand HIS worth to her as a mother has given her child a best friend and someone who can take him places she only dreamed of him going .

For a mom of a child with Cerebral Palsy, that is our dream. That someone will take them by their broken wings and help them learn to fly.