OK so here is the run down at the hospital.
Ty got sick, puked a bunch of times. We got to the hospital and got right back because of the fact we "thought" it might be his shunt. We immediately got back to get some CT scans ( immediately means 2 hours) and the doc in the ER thought is was probably just his lungs.
The scans came back with an enlarged ventricle. They sent us for an xray of his tummy which showed his tubing. The tubing had broken at some point and the bottom of the tubing, at some point, had stopped allowing it to drain.
As soon as the radiologist saw the broken tube our neurosurgeon was called and he came in. I headed home to grab the things I would need to sleep over and Dallas did the waiting. I got there after they had taken him in to surgery.
We talked with Dr. Elton after the surgery and waited to go back to recovery where we were met with a very very mad little dude. I didn't hold him in recovery just because of the extensive stuff done on his tummy.
So the medical part. The tubing had fallen to his tummy and they were not able to get it out without risk so they left it in. They shouldn't pose to much of a risk ( but this is Tyler) and we will get an ex ray of them in 2 weeks to check out where it all is. Because they were poking in his tummy it is VERY VERY sore.
He slept pretty good and was doing really well last night. After being up and down for a few hours this morning I finally asked them for some morphine. They gave it to him and he slept soundly for a few hours. Mom was awoke by all types of people needing to verify who they were touching ( even if I had been there all night and it was their 3rd time in )
He is up and moving ( slowly) tonight and we are so proud of him. He is eating, holding it down, dancing, jabbering and almost back to Tyler. He wants to walk but he is pretty sore so we hope it heals fast.
So the new and fixed (again) Tyler .
This is his head scar. He has it in the same place as his Craniosynostosis scar.
Showing his happy face and his leads. He has a hard time letting them take any tape off at the hospital. He screams. Instead we just bring him home and shower him and take them off Pain free.
Sporting the new dew. He just had it cut all cute and short. Now it is gone. There is not a bit of it left.
His new tummy scar. It isn't as bad as some of his others. It is not in the same place as his old one because there was already some scar tissue and it would have wrecked havoc on his bowels. (Thank goodness for small miracles when it comes to his neurosurgeon)
Him happy in his chair at home with mom and dad.I can't wait to get my house back in order and cleaned.
Ty sporting his Thomas balloon that we went and got at the gift shop. He deserved so much more than a balloon but he loves it.In the end I am so grateful we went in. That we listened to that voice and anxiety that was there. I wish a million times over I was just over reacting. He is a miracle and we love him and we will keep hoping for more miracles.
Thank you to those who offered support by calling and texting. You are amazing.
