WOW, did I miss 2 months or WHAT!
I guess when you get to busy and in over your head you don't know what to do with your nights and you don't document a dang thing.. Whoops.
So here is a overview to catch up. November is a big month full of Thanks and prematurity ( not thanks!) but we have to celebrate something. So education and love is what it is. Ready or not, here is the ENTIRE month of September. October might get its own.
September hit our 4 month mark for our surgery. It has been the LONGEST 4 months of my life. Ok it is probably closer to 5 but who is counting. So we had to go in for a few X-rays and to fix a small pressure sore that we were having. Tyler is seriously a TROOPER. Grayson is an even bigger trooper and he has won the award for the best brother award. We figured it out, Grayson has been to therapy with Tyler since he was 3 weeks old. He has been to more doctors appointments than most kids their entire life. Usually he is really good. But it has caused him to demand pictures of X-rays to look at on the iPad when most kids are playing games. (AND he sings songs about " Hydrocephalus" and plays WALK..... Not normal!)
opps... See. Off track already.
I don't have a sitter for appointments and so Grayson went with us. X-rays were way cool this time and took Grayson in the back with the tech and he watched while Tyler's legs and feet came up. We ended up back in Xray that day 3 different times.
Grayson practicing "letters" He has a bag that only goes to appointments and church. Poor toys get more action than the ones at home lately.
Tyler tells the Xray lady jokes while they zap him up. He is a real trooper too. Those positions are not easy to keep him in. But my fingers look awesome on X-ray!
By the time we are leaving, everyone is to tired to walk on their own, so I get the brunt of it. This is 90 pounds folks!!! Plus a diaper bag/ backpack on my back. I am fat, and it is STILL hot in September. Talk about GROSS!!!
Almost a year ago Tyler's old Respite worker asked if Tyler could be in her wedding. I thought Sure, but he is a people hog and he will take over and become an announcer and embarrass us all! She was fine with it and was so excited. So we got him a purple shirt and he matched all the big boys in the wedding and off we went. Brynne married a professional fisher man. So Tyler was the ring bearer. He had the rings on a fishing pole. It was so stinking cute. We went to the wedding rehearsal and sure enough, he stole the show and I was DYING of embarrassment. Brynne and her family, and the older boys in the line, LOVED him and he had a such a good time.
Wedding rehearsal with the family.
Tyler wanted to stand the whole time but we convinced him a chair was a good idea. He did a great job with his walker. He was happy and go lucky the entire time at the rehearsal and LOVED the sweet girl that was the flower girl.
The day of the wedding was SO long and hot, But Tyler did a great job. He also decided that he didn't want to use his walker and off he went. We didn't stay for the dinner after but we sure had a lot of fun!
Trying to cool off before photos. It was SOOO hot!
Tyler also had his birthday party in September. This year we went to the bowling alley. It is for sure a favorite of his. We invited his school class and had 4 of them come this year. It was a great time and by all. Tyler LOVED his party.
September came and went........ there was a 4 week countdown to the WALK.