Friday, March 1, 2013

March is Cerebral Palsy Awareness Month

March is cerebral palsy awareness month. For us, we are very aware of cerebral palsy everyday. So now we get to share a little with YOU about Cerebral Palsy and the very thing that makes our life different... but happy.

Tyler has cerebral palsy and got the diagnosis around his 2nd birthday. I had asked since he was born if his pediatrician thought he had "IT." I really thought that it would make a difference, but it didn't. I thought having Cerebral palsy would change who he was, and it didn't. He was still a baby, he was a still a boy, he was still a miracle. Nothing would change ANY of those things.

When he didn't walk on his own, but was SO close and so active, we were sitting in the neurologist office. We were discussing Ty's need for a EEG and his sleeping issues. Dr. Bernes said " Well you know he has Cerebral Palsy, right...." The conversation continued, but I sat there stunned. No one had ever put that on paper or said it to my face.

From that day forward, it was official, Tyler had Cerebral palsy. And it didn't change anything.

Today, Tyler is Tyler. He is who he is. And he just happens to have Cerebral Palsy. He is very funny, smart, sassy and a spit fire. He is also very active. He loves to ride bikes, run, chase dogs, play with kids and throw rocks. He loves the park, McDonald's ( if it has a play place) and to play the ipad and watch movies. He also happens to have Cerebral Palsy. Which means he is also courageous, brave and stubborn.

There is no cure for cerebral palsy. There is no remission. There is nothing. Just treatment. And treatment doesn't cure the condition that is extremely painful and does a huge mean number on these poor kids body.

During the month of March I hope to share the message of HOPE, but of faith, courage and love. But most of all raise awareness to what it does to these kiddo's and how we can help those who are caregivers of these kiddo's. It takes a lot of work to parent the most courageous of heroes.

Stay tuned throughout the month to learn more and to hear about others and their fight to live with Cerebral Palsy.

So here is the FIRST fact:

Cerebral palsy (CP) is a group of disorders that affect a person’s ability to move and maintain balance and posture. CP is the most common motor disability in childhood.Cerebral means having to do with the brain. Palsy means weakness or problems with using the muscles. CP is caused by abnormal brain development or damage to the developing brain that affects a person’s ability to control his or her muscles. 

1 comment:

stephanie said...

Hi, my name is Stephanie and in addition to CP, my daughter has microcephaly and a myriad of developmental delays. Thanks for your blog... I'm a new follower!!