The result of the test shows that Tyler has some sleep apnea. His oxygen stats drop into the low 80's and it made our doctor a little worried. Because kids with Cerebral palsy can have such strange muscle tone she felt that it was in his best interest to see an ENT.
Off we went to the ENT who suggested that they come out. Then a few weeks later we broke our nose and then a few days later we bumped it pretty bad. So surgery was scheduled. Last week it was rescheduled but the day has finally arrived.
Wednesday Tyler is scheduled to get his tonsils out. To make his life a little easier we are also doing phenol shots and casting the same time. Both docs are working together to help us not have to put Tyler under any more than we have to.
Up until Tuesday night and into the early morning I will be fine. It is when they take him away from me crying and saying momma that I just lose it.
We are lucky enough to have an early time in the OR so we don't have to fight him on the food and drink thing. We will have to fight him after.
Every time we plan to put him under or we do a surgery that isn't Emergency needed I worry that i have made the best choice for him. When he is DYING because his brain is swelling and his heart rate is dropping, I KNOW we need to do it NOW. But this half fills like it is just an elective surgery so I am a little more nervous.
So if you don't see us com up for air... leave us some words of wisdom....