We have casually dropped the word BOTOX on the blog a few times. I am sure perking up those ears wonder why on earth Ty needs botox. Here is the quick explanation. The Botulism some how makes his muscles less tight. Not sure how it does it but it does. It allows better movement for him. It is repeated every 3 months or 6 weeks. It is not offered under sedation for him because he gets 4 shots.It is a little worse than an immunization. It is still super tough to hold him down for.
Today was BOTOX day in our house/ Dr. K's. Dallas couldn't go with us today so I was on my own. Ty is a tough tough cookie. He started out pretty good and was a pretty happy kid. We brought a video of Rocket and Little Einsteins for the trip. He watched and played until Dr. K comes in. He STOPS and shuts down.
She has his shots all ready to go, we do a little chit chat and she talks to Tyler. We put him on my lap and turn him over. She puts on electrodes and starts doing the shots. Ty is in Hysterics by this point. Not only does it hurt but he is in an uncomfortable position. He is MAD. MAD MAD.
He is crying and screaming and trying to get away so much that he has broken some blood vessels in his face :( As we got him ready for bed the red puffy blotchy stuff is apparent and the little red rash.
Botox is over. The day is over.
Icing on the cake, Yes I saw the mean comments on my face book over it. No, sedation is not offered here. It isn't suppose to be that bad. He gets 4 shots. BUT we got home and the speech we so desperately need decided that even though we have accommodated her schedule ALL summer she is going some place else to work. Sorry.
Waiting lists are quit long. We are back to square ONE!
5 comments:
Praying for the speech issue. We have had to change mulitple times in the 10 months Noah has been home and it is not fun :( I am very interested in the results of the botox since my Jeremiah has severe cp and when he is home this may be an option for him. Thank you for sharing so honestly with us :)
Blessings,
Tami
PRAYING JEREMIAH HOME QUICKLY
www.tillGodbringsthemhome.blogspot.com
Keeping all of you in my thoughts for the therapy issue to resolve quickly. I don't understand this therapy thing at times, we had assigned therapists at one point who never even showed up yet were writing it up like they did. Crazy. How is Ty doing now? How is mommy?
This is where Wesley got his speech services...she was really good, I don't know if it will help but here is her info:
Desert Therapies, Inc.
8914 W. Adam Ave.
Peoria, AZ 85382
Ruth Bonno, M.A., CCC-SLP
(623) 362-3414
Desert Therapies, Inc. provides home based speech language services for children (birth & up) and adults in the Northwest Valley. Services include evaluation and treatment of communication disorders, and/or swallowing/feeding delays. Therapists have experience with augmentation/communication systems. Home programs are established for family members/staff to carryover therapy techniques. (FS,SFS, INS, DD)
Poor little guy...but if it helps...then we do what we can do! People that dont have a child that was born extremely premature, and or with special needs doesnot understand what us parents go through every day. It is very hard! You are doing the best for your little guy, I admire your strength for that! He is very, very cute by the way. It sucks about the speech therapy...Kenny is STILL on a waiting list...not talking at all! UGH...very dissapointing. Hang in there!
POOR TYLER and POOR NANCY!!! I hope the Botox helps enough for it to be worth all the tears and hystarics!!! I also hope you get the speech all untanggled. SLY!!!!
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