Orthopedics- CHECK

Ty has this thing where we make a list, we talk about the list and he “checks” it off.  It is kinda funny to hear him say it, and he even does it when he is all by himself.

Example : “ Mom what are we doing today?”
        Me: “ School, doctors and then home.”
        Ty : “ School- Check, doctors- Check and home- check”

The lists and checking could go on for hours. He loves to do it at the end of the day, when we have a HUGE list to check off.

After our trip to Utah and I was horrified as to how loose his legs were and our appointment with the new physiatrist, I got some opinions of other moms of CP kiddos and decided that we really needed to see a orthopedic doc to make sure we weren’t hurting anything in the long run. And that the end result was what we were looking for.

We made an appointment for the new CP clinic that Dr. S is putting on at PCH. But, what we didn’t know, was that you had to be a established patient. So we got put in the day before the clinic. I was a little disappointed but found that this was the FIRST one!

Dr. S was AMAZING! What makes him so much cooler, is that he has 2 kids with CP. They just turned 16. He has sat in our seat before and he was so easy to ask questions too.

He was concerned about our course of action with persistent phenol. He doesn’t love it. We have found that most don’t and we are kind of on our own. We can’t find a doctor down here that does it and so we do have to go to Utah for it. So we are looking at some other options.

He was concerned that we were not seriously looking at any types of surgeries to help loosen his muscles. But the biggest concern is his ankles. His toes will always be the way they are and they will always be a little deformed but overall he really needs stuff done with his ankles to improve the quality of life and walking.

Another big concern is that we have not ever had xrays of his hips. We did ONCE when he was a baby at Shriner’s but no one has ever mentioned it before. This kind of freaked me out. My friends kiddo had surgery and it did not look pleasant so I was not looking forward to the idea that we overlooked something that is kinda big.  The other big concern was that I was not expecting xrays so I didn’t bring another person to hang out with Grayson. Since they wouldn’t let G stay in there I had to leave Ty alone.

We went to the xray room and Ty climbed right up and talked to the lady and was so so so good. I was a little worried about leaving and stood outside the door waiting for a cry or a scream or something and it never happened. When they came out the door, Ty said mom, that was awesome and I can spell xray. He handed over his sticker and we were done.

His hips are OK. Not perfect, but OK. They don’t think that we will be needing surgery on them any time soon and we are OK. So really the only thing they want me to think about is the Heel surgery. We all have such a different idea of what to do. Every single doctor we have seen in the last 2 months has a different opinion.

We left the appointment feeling pretty empowered. We headed towards Tempe where our dad works so that Ty could go to the beach. We used our stinky diaper plastic bags to gather up a rocks and we had our left over lunch to feed to the birds.

We had a great time. Ty and Grayson chased birds for a while. Dallas was happy to see us. I was able to go to a Relief society activity that was very awesome. So it was a good day.




Good information, good day, great kids.


Very Thankful.

Tales of Puking Woes!

I think Aunt Chantel, Crystal and cousin Noah and Lily sent us the pukes!

Friday after a TOO eventful day of late people and frustration, we came home from our date to find a handsome just short of 3 year old awake. He was acting kinda weird and wouldn't go to Dallas. So I did what I could and got him in bed. We ended up getting him to bed but the long way with Dallas having to do all the hard work and me going to bed early because I had to work.

Saturday I got home at 11 pm and Ty soon woke up and started the antics of wanting mom. Because of my early work time I took Dallas up on the offer to yet again stay up with Ty. He ended up sitting in there for a long time just rocking our sweet little dude.

Dallas and I went to bed around 1:30am and soon after turning off the lights heard some strange noises at our window and all over our house. It sounded as though someone was trying to get in and were knocking at our windows. It was horribly creepy. It kept going for a while and Dallas got up and got dressed and utilized the second amendment and went out with his gun. He couldn't see anyone but I was terrified.

Around 3 Ty came into our room and slept with us. He usually wakes up for the day fairly early. He woke at 8! I had to go to work by 9 so I hurried and got ready and Tyler kinda laid their with Dallas. Very weird for Tyler.

I worked ALL day and got a call from Dallas at the very end of my shift that Ty was sick. I got home to a puking fountain called Tyler. Poor kid. I stripped and got showered so what ever germs I happened to be carrying were not infecting my poor family again and just as I got done Ty started puking again so in I went with Ty.

We then decided that it was a good idea to take him to the Urgent care/ER at Phoenix children's east valley. We got Ty some Zofran. Let them know that he had been holding on to his arm when we asked him where it hurt and got him an exray just to make sure and they decided that he didn't need a CT scan because the zofran was helping. If it was a shunt malfunction it wouldn't have helped.

After a few hours there we were off and Tyler was almost back to his old self. When we got home we got our bed made ( the vomit fountain tainted it) we got ready for bed. He slept with me for part of the night and part of the night alone. He was up a million times.

We have already gone through every movie we own and have had a million whines. I have no idea what he wants so we have a huge game of guessing on our hands.

Wish us luck for the day!!

The bonuses: No shunt issue, no more puke and no broken bones.