I always thought that everyone would want to have TIGHT muscles. Tight buns, tight abs, tight legs.. TIGHT TIGHT!! Everyone likes tight. EXCEPT...... YOUR BABY!! Thanks to our brain bleed we have TIGHT TIGHT TIGHT. He has been "different" feeling since he was little. You could always find him standing, jumping and bouncing from the time his little feet would let him.
There were times we would have him lying on the couch between us letting his legs go a mile a minute kicking us to gain strength Little did we know that it would be abnormal strength in one muscles zone and not strong enough in the other.
We really noticed when the sitting milestone didn't really happen. It took a lot of repetitious movements for him to get the "feel" of it. Finally we got him sitting. Crawling came easier and then walking felt like it never came .
Ty walks with a "gimp" and just in the last year is when we really started treating his spastic muscles. We have a team now. Sometimes I don't know who does what in the team but none the less it is a team
We have tried casting, AFO's, SMO, and now botox. The next step is phenol shots. They last longer and are more immediate.
Phenol needs to be put into the nerve where they enter the muscles so they are much more painful. Since it is not just a treatment by itself it is usually combined with other therapy
Watching Tyler and his muscles and his walking makes me sad sometimes. No matter what we do it will never change it to "normal" we can just better our normal.
1 comment:
I kind of understand what you are going through. My brother was born with too short of cords in the back of his legs, so he has never walked properly. His short cords don't allow his heals to touch the ground unles his legs are spread wide a part. He walks on his tip toes (like a baleriana dancer). He feet are deformed because of his walking on his toes. We have tried EVERYTHING for him to walk properly but nothing has worked. I hope You are able to get Tyler walking better.
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