Back among the Google searches!

I honestly HATE my blog being private. I figure if I am going to live this I might as well share it. Of course there are always more precautions you can take in making your family safe but one of the main reasons of doing this blog was to help others along their way.

When I was around 25 weeks pregnant I googled 25 weeker. I came up with a Women's blog that had just delivered a 25 weeker. We were just embarking on our 25th week so I was entranced by this womens blog. Her 25 weeker was born just a few weeks BEFORE mine came. Little did I know that we would run the NICU journey together ( in different states of course) and see her struggles, triumphs and journey through her moms blog.

I still follow that moms blog. I am not sure she reads mine but I have her on my face book and I participate ( though in frequently) on some of the preemie groups I once was VERY active in. Desperately in search of some information, some idea of what our future held.

I have really tried to blog Me, and my feelings. Sometimes they get taken wrong by others reading and read as I am unhappy or negative or plain bitchy. For those who take it that way I am sorry. I would be happy to converse with your privately. To come to some conclusion as to why you feel that way etc.

I enjoy looking at my site meter ( Thanks Amy for upgrading me!) and getting the googled words that brought people here. MOST are words like Age of viability, outcomes of early preemies, and most important words are ways that I feel like I can help someone if they come across this blog.

Is it all fun and games. Not really. But it is our life.

Not a activity that goes by, or a time in church or even going into the grocery store that I have to make accommodations that another person may NEVER think about. For example : You put your 3 year old in the seat to sit down in the cart. So do I. We shop. You lift your 3 year old out of the cart. East as pie... Not for us. Because he can't move his legs correctly he gets stuck. It looks awkward and it takes some accommodations on my part. What shoes would be better to not get stuck? where can we do this awkward exchanges to avoid stares of "what is wrong with your child" from on lookers. I don't Ask YOU for these accommodations and realize you know nothing of that small accommodation.

We can't take a simple trip to the zoo without me thinking ahead. He can't see the animals. Unless they are close he is out. He is looking into a blank canvas. While your kid i LOVING the zoo my wants to love the zoo but can't see it. Not his fault. I don't ask you NOT to enjoy the zoo, it just takes me longer to get us the accommodations that we need to enjoy a trip to the zoo.

The blog link was changed to prematurity with love for a reason. All of our accommodations that we are making for our child are changes we are making for love. All things we do in our day is all about Tyler. All about him. Our whole world is Tyler.

We parent with love. We don't spank. We have made our entire day's schedule revolving around one person. What his therapy is, what school is, what swim lesson. Just like EVERY other mom. Then we get to parent the prematurity. We have horrific appointments, bumps in the road, Surgeries beyond understanding. Yet we still do it with love. And it is LOVE... Accommodation, appointments, stress, bad days, all of it is because we love him.




So, please take the blog with integrity challenge with me. Disagree with the issues but do it with kindness, not to be horrific and mean. I have had enough of that. I am issuing that same respect. Please, be kind!